On April 17, 2025, the global bleeding disorders community will unite to commemorate World Hemophilia Day with a groundbreaking theme that shines a spotlight on a critically underserved population. The World Federation of Hemophilia (WFH) announced on October 1st the new theme, "Access for All: Women and Girls Bleed Too" as the central focus for the upcoming year's observance.
This theme represents a significant step forward in addressing the often-overlooked needs of women and girls with bleeding disorders (WGBDs). Despite advancements in hemophilia treatment and care, WGBDs continue to face challenges in diagnosis, treatment, and overall quality of life.
The National Bleeding Disorders Foundation (NBDF) has expressed enthusiasm for this theme, recognizing its potential to drive meaningful change within the community. "We are thrilled to see the WFH, inspired by the International Women & Girls with Bleeding Disorders Committee’s advocacy prioritizing the needs of women and girls with bleeding disorders," said Dawn Rotellini, Chief Operating Officer of NBDF. "This theme aligns perfectly with our ongoing efforts to ensure equitable care for all individuals affected by bleeding disorders."
The 2025 theme addresses several key issues:
- Underdiagnosis: Many women and girls with bleeding disorders go undiagnosed or face significant delays in diagnosis due to misconceptions about the prevalence of these conditions in females.
- Inadequate Treatment: Even when diagnosed, WGBDs often receive suboptimal care compared to their male counterparts.
- Lack of Awareness: There is a general lack of awareness about how bleeding disorders manifest in women and girls, both among the public and healthcare providers.
- Impact on Quality of Life: Undiagnosed or poorly managed bleeding disorders can significantly impact the quality of life for women and girls, affecting education, career, and personal relationships.
As April 17, 2025, approaches, the bleeding disorders community stands united in its commitment to ensuring that all individuals, regardless of gender, have access to the diagnosis, treatment, and care they need. The theme "Access for All: Women and Girls Bleed Too" serves as a powerful reminder that bleeding disorders do not discriminate, and neither should our healthcare systems.
For more information on World Hemophilia Day 2025 and how you can get involved, visit NBDF’s website, WFH’s website or contact your local NBDF chapter. Remember to use the official hashtags #WHD2025 #NBDFUnites
By Kyla Clark, NBDF Director of PR and Communications
