There are a number of programs and resources available to assist with the financial burden of living with a bleeding disorder. NBDF continues to update this resource with applicable programs.

 

Bayer

$0 Co-pay Program (Kovaltry and Jivi)

  • You may be able to receive up to $20,000 in assistance per year, regardless of income
  • Assistance is awarded per patient. Multiple members of the same household can apply
  • Enrollment can be started and completed in one short phone call

Reimbursement for Lab Testing (Kovaltry and Jivi)

  • You may be able to receive up to $250 per year to apply towards out-of-pocket costs for laboratory tests for Kovaltry and Jivi

Free Trial Program (Kovaltry and Jivi)

  • Patients new to Kovaltry or Jivi can receive 1 month of free therapy
  • The selected product is delivered to your home
  • Any patient new to Kovaltry or Jivi is able to participate, regardless of insurance type or status

Patient Loyalty Program (Kogenate, Kovaltry, Jivi)

  • Eligible patients can receive Kogenate® FS, Kovaltry® or Jivi® at no cost if you experience gaps or changes with insurance coverage

Live Helpline Support (Kogenate, Kovaltry, Jivi)

  • Phone: 1-800-288-8374
  • 9:00 AM–6:00 PM (ET) Monday–Friday.
  • Speak with a health insurance expert
  • Multiple languages, including Spanish, are available

More information:

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CSL Behring

“My Access” Program

  • May cover up to $12,000 of out-of-pocket (OOP) expenses each year for Afstyla, Idelvion, Humate P, Helixate-FS*
  • Eligibility Requirements:
    • Must have private insurance, use a CSL Behring therapy, and be a U.S. resident
    • Enrollment is not retroactive
    • Must take a CSL Behring product for the treatment of von Willebrand disease or hemophilia A
    • Re-enroll every 12 months
  • Program Information: 

Patient Assistance Program

  • Provides free product to patients on CSL products for up to 12 months
  • Eligibility Requirements:
    • Must be uninsured or underinsured or seeking insurance (in appeal or delay in coverage decision)
    • Income is < 250% FPL
    • Must seek insurance or other form of assistance for up to 3 months after participating for a year
    • Must participate in insurance counseling

Assurance Program

  • Patients earn points for continued use of CSL Behring medication.
  • The points can be redeemed for free product if a patient has a lapse in insurance coverage
  • Eligibility Requirements:
    • Must have private insurance, use a CSL Behring therapy, and be a U.S. resident
    • Must enroll in Assurance program while insured and on product.  Enrollment is not retroactive.
    • Earn 1 point per month of consecutive use of product
    • Patient suffers a lapse in coverage and redeems 3 points for 1 month of product supply
    • Points are earned monthly and expire 5 years after date earned. (ex: Point earned in May 2015 expires May 2020)
  • Program Information:
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Genentech

SPECIAL COVID-19 UPDATE

We realize there is increased anxiety among patients, caregivers, and their families, as resources are stretched due to losses in wages or health insurance. We want to reiterate that we are here to help and our financial assistance programs remain open and operational across all therapeutic areas for both new and existing patients. Please visit: https://www.genentech-access.com/patient/brands/hemlibra.html or call (866) 422-2377.

In addition, we are supporting patients and health care professionals to best navigate the complexities of social distancing while continuing treatment. The Genentech Patient Foundation, which provides free medicine to qualifying patients, is able to modify shipping locations and frequencies to ensure needed medicine gets to the right place for the patient to be safely treated.

HEMLIBRA Access Solutions

HEMLIBRA Co-Pay Program

  • Helps with up to $15,000per year in HEMLIBRA co-pay costs
  • Eligibility Requirements
    • Have been prescribed HEMLIBRA for an FDA-approved indication
    • Are 18 years of age or older, or have a legal guardian 18 years of age or older to manage the program
    • Have commercial (private or non-governmental) insurance. This includes plans available through state and federal health insurance marketplaces
    • Do not receive support from the Genentech Patient Foundation or any other independent co-pay assistance foundations for HEMLIBRA
    •  Are not a government beneficiary and/or participant in a federal or state-funded health insurance program (eg, Medicare, Medicare Advantage, Medigap, Medicaid, VA, DoD or TRICARE)
    •  Do not reside in a state where the program is prohibited
  • Program Info

Genentech Patient Foundation

  • The Genentech Patient Foundation gives free Genentech medicine to people who don't have insurance coverage or who have financial concerns and to people who meet certain income criteria
  • Program info:

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Grifols

Factors for Health:

  • The $0 Copay Assistance Program, which may cover out-of-pocket expenses not covered or partially covered by insurance
  • The Free Trial Program for eligible patients who are new to ALPHANATE
  • Benefits investigation and support services to help patients coordinate with their insurer
  • The Patient Assistance Program for patients with no coverage or lapsed coverage
  • Care Coordination to help patients gain access to and remain on ALPHANATE
  • Program information:

Patient Care Programs-Grifols Assurance for Patient (PAP)

Patient Assistance Program (PAP)

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Medexus Pharma

IXINITY Savings Program

  • Up to $12,000 annually
  • Eligibility requirements:
    • Must have a valid prescription for IXINITY
    • Must have commercial insurance
    • No monthly limits
    • No income requirements
  • Co-Pay program may be used retroactively for up to 12 months
  • Program information:
    • 1-855-IXINITY (1-855-494-6489) to sign up

IXINITY Patient Assistance Program

  • Program helps deliver treatment to those in need, even if they do not have insurance. If you are uninsured or experience a lapse in your coverage, this program may cover you.
  • IXperience Concierge program information:
    • 1-855-IXINITY (1-855-494-6489)

FACTOR IT FORWARD, by IXINITY (New)

  • This program is accessible through your HTC
  • Through Factor It Forward, your HTC may be able to access factor IX for you in times of need.
  • Talk to your HTC to find out if they are part of Factor it Forward, by IXINITY, coagulation factor IX (recombinant).
  • Program information:

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Novo Nordisk

Product Assistance Program

  • Amount of available assistance varies by product
  • Eligibility Requirements:
    • Must be a U.S. Citizen or legal resident
    • Total household income is at or below 400% of the federal poverty level (FPL)
    • Do not have prescription coverage, such as an HMO or PPO, and do not qualify for any other federal, state, or government program such as Medicare or Medicaid
    • Must have been prescribed a Novo Nordisk factor product for an indicated condition
  • Program Information:

NovoCare

  • If you have commercial insurance, such as insurance you receive through an employer, you may be eligible to pay as little as $0 per 30-day supply of your hemophilia or rare bleeding disorders medicine (with a maximum benefit of $12,000 per calendar year).
  • For complete set of eligibility criteria, and terms and conditions, please visit https://www.novocare.com/eligibility/bleeding-disorder-savings-card.html 

HeroPath

  • The HeroPath™ program matches teens and adults ages 16 to 25 with a coach to offer guidance for personal and professional life goals. It’s designed to help you identify opportunities, navigate challenges, and set a course for success and self-confidence.
  • Eligibility:
    • Be a US citizen
    • Be between 16-25 years of age
    • Have commercial insurance
  • Program Information:

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Octapharma

Octapharma created Factor My Way, a robust patient support program designed for and by those living with hemophilia A and von Willebrand disease, and for those who help them. Membership in Factor My Way is complimentary, open to anyone living in the US who is at least 18 years old.

Factor My Way: Free Trial Program

  • If you are a hemophilia A or von Willebrand disease patient currently using another FVIII or VWD product, or if you’re not currently using factor treatment, you may want to consider a factor therapy from Octapharma. We are making it easier. The Factor My Way Free Trial Program is designed to give you the chance to experience the safety, efficacy and convenience of Octapharma factor therapies at no cost.

  • Eligible hemophilia A and von Willebrand disease patients can receive a predefined number of Octapharma factor therapy doses as prescribed by their physician, within the Free Trial Program guidelines. This Octapharma factor therapy is provided to you at no cost. The appropriate product will be shipped directly to you and administered under the supervision and care of your physician.

  • Program information: https://factormyway.com/home/bleeding-disorder-free-trial-program.html

Factor My Way: Compassionate Access Program

  • If you are a hemophilia A or von Willebrand disease patient experiencing financial hardship due to job loss, insurance coverage loss, or are simply finding it challenging to cover the cost of your factor therapy, our Compassionate Access Program may help. The program allows patients who qualify a period of access to Octapharma factor therapy at no cost.
  • Program information: https://factormyway.com/home/compassionate-access.html

Factor My Way: Co-Pay Assistance Program

  • The Octapharma Co–Pay Assistance Program available through Factor My Way may provide eligible patients with significant savings on some of the costs associated with their Octapharma factor treatments. If you’re currently using an Octapharma factor product, or if you’re about to begin therapy, our Co–Pay Assistance Program can offer savings up to $12,000 per year on the out–of–pocket costs associated with your therapy.
  • Eligibility Requirements and Coverage:
    • You must be enrolled in Factor My Way
    • You must currently be using a factor product from Octapharma or have a prescription to begin therapy
      • You must have active commercial insurance coverage
      • Those with Medicare, Medicaid, Medigap, VA, DOD, Tricare or other federal or state government insurance are not eligible to receive co-pay assistance
    • Co–Pay assistance may only be applied to co–payments, deductibles, and co-insurance associated with the cost of the Octapharma factor therapy
      • The Co–Pay Assistance Program does not cover costs associated with administration of therapy, such as office visits, infusion costs, or other professional services
    • Once you are enrolled in the Co–Pay Assistance Program, you are covered for that calendar year. You will have to re–enroll at the end of the year for the next calendar year
  • Program information: https://factormyway.com/home/copay-program.html

Factor My Way Support Center

  • The Factor My Way Support Center offers expert advice about insurance matters impacting coverage of your treatment costs – individual claims processing reviews, assistance in appeals, insurance investigations into product coverage, and gaining approvals for prior authorizations for factor treatments. Support Center Representatives can also answer questions about the three Factor My Way financial assistance programs
  • Phone: 1-855-498-4260
  • Monday-Friday from 8:30 AM-5:00 PM ET

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Pfizer

Pfizer’s dedication to the hemophilia community extends beyond science and innovation. That’s why they offer Pfizer Hemophilia Financial Support Resources and Programs to help eligible patients on their treatment journey. 

Pfizer Hemophilia Connect

  • A one-stop source for all Pfizer Hemophilia resources and support programs, including:
    • One number with access to all of Pfizer Hemophilia's resources and support programs
    • Financial support programs for eligible patients
    • Insurance counseling and reimbursement support for insured patients
    • Centralized support for patients and caregivers
    • Community resources like Patient Affairs Liaisons
  • Support team is dedicated to working with patients, their caregivers, and health care providers or pharmacies depending on your individual needs.
  • The Pfizer Patient Assistance Program is a joint program of Pfizer Inc. and the Pfizer Patient Assistance FoundationTM. The Pfizer Patient Assistance Foundation is a separate legal entity from Pfizer Inc. with distinct legal restrictions.
  • Program information:

Pfizer Factor Savings Card

Pfizer Free Trial Prescription Program

  • Patients prescribed Pfizer factor products for the first time may be eligible to receive a one-time, 1-month trial supply of up to 20,000 IU at no cost
  • This program is available only for first-time use by commercially insured patients. Medicare/​​​Medicaid beneficiaries are not eligible
  • Program information:

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Sanofi

No matter your situation, we are here with you every step of the way. Our goal is to help patients get their Sanofi hemophilia medications as smoothly as possible whether new to Sanofi or switching from another product. For each of our therapies - ALTUVIIIO, ALPROLIX and ELOCTATE, we offer a variety of support services and programs for eligible patients including hemophilia education, access assistance, financial assistance programs, and treatment support. We have a dedicated team who works one-on-one with patients and caregivers to obtain access to treatment. Sanofi Hemophilia Community Relations and Education (CoRe) Managers offer education to people with hemophilia and their families. CoRes are dedicated professionals with diverse backgrounds, and their goal is to empower you to live your best life with hemophilia. Sanofi Case Managers provide customized financial & insurance support to patients, caregivers and healthcare professionals. Sanofi Therapeutic Education Managers (TEMs) are here to support you by providing product education, as well as ongoing support for different stages of life.

Sanofi is proud to offer financial programs and resources to help your patients minimize their out-of-pocket costs for ALTUVIIIO, ALPROLIX and ELOCTATE.

Free Trial Plus Program

  • Allows for a 30-day supply of free product for eligible patients
  • Eligibility Requirements:
    • Must be prescribed and starting ALTUVIIIO, ALPROLIX, and ELOCTATE for the first time
    • Patients can have commercial (private) or government insurance
    • There is no financial eligibility criteria
    • Other restrictions may apply

Factor Access Program

  • Access treatment if your insurance is interrupted   
  • Eligibility Requirements:
    • Patients experiencing a gap in insurance coverage, have reached maximum insurance coverage limit, or have no prescription coverage

Live Helpline Support (ALTUVIIIO, ALPROLIX, ELOCTATE):

  • Phone 1-855-749-4363 
  • Monday through Friday 8 AM to 8 PM ET

Additional Program Information:

ALPROLIX Financial Assistance Programs

Programs information page: https://www.alprolix.com/resources/financial-assistance

  • Free Trial Plus Program
    • Allows for either a 30-day supply of free Alprolix or free Alprolix for up to 1 year, if needed, until healthcare coverage begins
    • Eligibility Requirements:
      • First prescription of ALPROLIX
      • You are uninsured or insured by private insurance
      • Other restrictions may apply
  • Copay Program
    • Assists with monthly out-of-pocket costs for Alprolix up to $20,000 a year, and helps link patients to coverage resources
    • Eligibility Requirements:
      • No income requirement or cap
      • Only applies to private insurance
      • Must have a U.S.-based prescriber and pharmacy
      • Other limits may apply
  • Factor Access Program
    • Eligibility Requirements:
      • Experiencing a gap in insurance coverage, have reached maximum insurance coverage limit, or have no prescription coverage
      • Other restrictions may apply

ELOCTATE Financial Assistance Programs

Programs information page: https://www.eloctate.com/resources/financial-assistance

  • Free Trial Plus Program
    • Allows for either a 30-day supply of free Eloctate or Eloctate for up to 1 year, if needed, until healthcare coverage begins
    • Eligibility Requirements:
      • First prescription of Eloctate
      • You are uninsured or insured by private insurance
      • Other restrictions may apply
  • Copay Program
    • Assists with monthly out-of-pocket costs for Eloctate up to $20,000 a year and helps link patients to coverage resources
    • Eligibility Requirements:
      • No income requirements or caps
      • Only applies to private insurance
      • Must have a U.S.-based prescriber and pharmacy
      • Other restrictions may apply
  • Factor Access Program
    • Eligibility Requirements:
      • Experiencing a gap in insurance coverage, have reached maximum insurance coverage limit, have no prescription coverage, or meets specific income guidelines adjusted for family size
      • Other restrictions may apply

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Takeda

SPECIAL COVID-19 UPDATE:

At Takeda, our highest priority is the patients we serve. Our Hematology Support Center team is available to support patients with their Takeda treatment especially during the COVID-19 pandemic. Our financial assistance programs remain open and operational. Patient Access Managers (PAM) are available to provide insurance and access education and support for patients currently on Takeda products. PAMs can also help to address barriers to treatment access. Patients and caregivers can call the Hematology Support Center for more information: 888-229-8379 Mon-Fri | 8:30 a.m. to 8:00 p.m. ET | https://www.hematologysupport.com/

Freedom of Choice:

  • Provides eligible individuals with a free trial of select Takeda products
  • Program information: 1-888-229-8379

Hematology Support Center- Financial Assistance

Takeda's Hematology Support Center (HSC) is a team dedicated to help patients who have been

prescribed Takeda hematology products including:

  • Reviewing financial assistance options, including co-pay support and emergency access to Takeda Hematology products for existing patients in case of sudden lapse in coverage
  • Explaining insurance coverage options and assisting with insurance challenges
  • Providing access to educational tools for disease and insurance information
  • Connecting patients and caregivers with informational and community resources, including educational programs
  • Offering one-on-one health education support in English or Spanish
  • Program Information:

HSC Copay Assistance Program

  • Covers an eligible patient’s copay, coinsurance, or deductible medication costs, up to $20,000 a year.
  • Not valid for prescriptions reimbursed, in whole or in part, by Medicaid, Medicare, Medigap, VA, DoD, TRICARE or any other federal or state healthcare programs, including state pharmaceutical assistance programs, and where prohibited by the health insurance provider or by law. Non-medication expenses, such as ancillary supplies are not eligible.
  • If patient has payer coverage for administration services, their out-pocket for the product administration may be covered
  • Eligibility Requirements:
    • Must have a current prescription for an eligible Takeda factor or bypass product
    • Must have a diagnosis of Hemophilia A or B, or a hemophilia A or B inhibitor
  • Must have commercial insurance
  • Additional terms and conditions apply
  • Program information: https://www.hematologysupport.com/financial-assistance#insurance

Patient Assistance Program:

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Other Assistance Programs

  • PAN Foundation
    • Offers:
      • Copay assistance fund
        • Deductibles, co-pays and coinsurance
        • $2,900 per enrollment period
        • Second grant available upon need and available funding
      • Premium assistance fund
        • Applicable for one or more health plans
        • $4,500 per enrollment period.
        • Second grant available upon need and available funding
    • Grant Timeline
      • Each eligibility period is for 12 months and new patients receive a 3-month lookback period
      • If you run out of funding before your enrollment period ends, request a second grant if the disease fund is open
    • Qualifications for hemophilia programs
      • Must be getting treatment for hemophilia.
      • Must have health insurance that covers his or her qualifying medication
      • Medication must be listed on PAN’s list of covered medications
      • At or below 400% of the FPL
      • Must reside and receive treatment in the United States. U.S. citizenship is not a requirement
    • Covers: hemophilia A and B with and without inhibitors
    • To check status of fund: www.panfoundation.org

PAN has developed a free resource to simplify the search for financial assistance for all charitable programs. It is a web-based and accessible at www.fundfinder.org.

  • Funding availability updated hourly
  • Information pulled from the websites of 8 charitable foundations
  • Allows you to subscribe to email or text message notifications for specific disease funds openings and receive alerts when funding becomes available
  • Accessia Health
    • Offers financial assistance to people who are diagnosed with chronic medical conditions and whose household income qualifies. Assistance can apply to one or more of the following:
      • Copays
      • Health insurance premiums
      • Travel costs
      • Other medical costs
    • Programs information: https://accessiahealth.org/financial-assistance/
  • The Assistance Fund (TAF)
    • Offers:
      • Copay assistance
      • Premium assistance
      • Incidental Medical Expenses
        • Misc. out-of-pocket costs for incidental medical expenses (e.g., travel, infusion costs, nursing services)
      • May receive assistance through the copay assistance programs and the insurance premium and incidentals programs simultaneously, as long as funding is available
    • Eligibility:
      • U.S. or permanent resident
      • Income: up to 700% FPL, household
      • Diagnosis: hemophilia A and B
      • Insurance Status: Underlying primary coverage benefit
      • Prescription: FDA-approved therapy
    • Covers: hemophilia with and without inhibitors, Thrombocytopenia
    • Programs are for a 12-month period with option to reenroll (opens in 4th quarter)
      •  New enrollments receive program approval for up to 15 months
    • Programs information: https://enroll.tafcares.org/
  • Patient Advocate Foundation (PAF) Co-Pay Relief
    • Covers opay, coinsurance, and deductible
    • Maximum amount per year is $12,500
    • Eligibility
      • 400% or less of FPL (adjusted for Cost of Living Index (COLI) and number in household)
      • Open to all insurance types
      • Must reside and receive treatment in the United States.
    • To learn more and apply for the program: https://copays.org/

 

This page was last revised in spring 2023.

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