Add Your Voice
Community Voices in Research (CVR) is a community-powered registry that gathers information through surveys offering researchers a 360-degree view of what it is like to live with a bleeding disorder. Open to all persons affected by an inherited bleeding disorder as well as their non-affected family members (parents, spouses, grandparents, and siblings), it provides all the opportunity to participate in patient-reported outcomes research.
Join us at these events
TCS NYC Marathon
NBDF Research Roundtable
Connect with other families affected by bleeding disorders in your area through NBDF's chapter network.
“NBDF strengthens our community and gives us a sense that we belong to something bigger than ourselves—that we’re all in this together. That’s an amazing feeling.” — Monica, Community Member
Your generosity has a huge impact!