Featuring: Patient Advocate, Dee W.

Description: From despair to hope: A mother's journey navigating von Willebrand's Type 3 and advocating for life-changing treatments, proving that relentless advocacy and love can overcome any challenge.

Discussion Questions: 

  1. What are some key lessons learned from Camden's journey, and how can these insights inform healthcare practices and policies to improve outcomes for patients with rare bleeding disorders?
  2. In what ways do patient and parent advocacy groups play a crucial role in driving research, awareness, and policy changes for rare diseases, and how can individuals get involved in advocacy efforts?
  3. How does Camden's story illustrate the transformative power of medical advancements and personalized treatments in enhancing quality of life for individuals with chronic disorder?