Featuring: Advocate Expert, Sue Martin
Description: Navigating the treacherous terrain of rare disease healthcare, battling copay accumulator adjusters, and fighting for fair access to life-saving treatments.
Discussion Questions:
- In what ways can healthcare providers better communicate and educate patients about the complexities of insurance policies, including accumulator adjusters and maximizers?
- What role do drug manufacturers, Pharmacy Benefit Managers (PBMs), and insurers play in creating a more transparent and affordable healthcare system for patients with rare or expensive diseases?
- How can healthcare systems incorporate patient feedback and experiences into policy changes to ensure fair and equitable access to medications for individuals with high-cost conditions?