Featuring: Advocate Expert, Sarah Pilacik

Description: Shining a spotlight on the impact of copay accumulators and maximizers: a call for federal protections to ensure access to essential medications for patients with rare diseases.

Discussion Questions: 

  1. How can federal legislation like H.R.830 effectively address the challenges posed by copay accumulators and maximizers for individuals with bleeding disorders and other high-cost medications?
  2. What role should federal agencies play in regulating and monitoring copay accumulator and maximizer programs to ensure they do not unfairly burden patients or restrict access to essential medications?
  3. What are some potential barriers or challenges to implementing federal protections against copay accumulators and maximizers, and how can these be addressed to ensure effective policy enforcement?