NBDF's Wednesday Webinar Series
Join us for an enlightening webinar, "Breaking Barriers: Advancing Inclusivity in Inherited Bleeding Disorders," where we delve into the crucial topic of fostering inclusivity within the inherited bleeding disorders community. Led by the esteemed European Haemophilia Consortium (EHC), this webinar will spotlight the ERIN (European Rare & Inhibitor Network) initiative, showcasing its pivotal role in promoting inclusivity and amplifying the voices of all individuals affected by these conditions.
In this engaging session, participants will gain insights into the challenges faced by diverse communities within the inherited bleeding disorders sphere and explore actionable strategies for overcoming these barriers. From addressing disparities in access to care to fostering a culture of inclusivity within patient organizations, our panel of experts will illuminate key priorities identified by the European Haemophilia Consortium.
Whether you're a healthcare professional, patient advocate, researcher, or member of the inherited bleeding disorders community, this webinar offers a valuable opportunity to learn, connect, and collaborate toward a more inclusive future. Join us as we unite to advance inclusivity and empower every individual within the inherited bleeding disorders community. Don't miss this opportunity to gain valuable knowledge and contribute to the advancement of hemophilia care. Register now to secure your spot!
NBDF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the latest in research, breakthrough developments, and more.
Register for Wednesday Webinar Series
About Michael Crato, EHC President:
Miguel Crato has been a member of the EHC Steering Committee since his election in 2016 and re-election in 2020. In October 2023 at the General Assembly of the EHC Miguel was elected as the new EHC President.
Miguel has also been a member of the EHC Inhibitor Working Group (IWG) since its establishment in 2015. In 2022, Miguel became a committee member of the groundbreaking European Rare and Inhibitors Network (ERIN). The ERIN project aims to foster best practices in treating and caring for those with extremely rare conditions, and enforce and help our National Member Organisations (NMO) with the differentiated tools to advocate for equality and equity within this underserved community.
To read more about Miguel click here.
About Olivia Romero Lux, EHC CEO:
Olivia joined the EHC team in April 2024 after serving the EHC community as a volunteer for many years and in different roles: Steering Committee member and interim President.
Focused on equal treatment access for all, youth education, and National Member Organisations (NMOs) capacity building, Olivia was elected to the Steering Committee of the EHC from 2013 until 2020 and has been the EHC Youth Advisor since then. She was co-opted to join the EHC Steering Committee again in January 2023. In July 2023, the EHC Steering Committee unanimously appointed Olivia Romero Lux to assume the role of President in an interim caretaking capacity until the end of the term in October 2023 after the resignation of Declan Noone.
With a proven track record of dedication and experience, Olivia brings a wealth of expertise and leadership to the EHC. Her commitment to the current vision and strategic objectives and her innovative and balanced approach to challenges will guide the EHC through its next phase of growth and development.