This material is provided for your general information only. NHF does not give medical advice or engage in the practice of medicine. NHF under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.
Fetal tissue research offers the potential, through the transplantation of fetal 1iver cells, to cure hemophi1ia. Research in this area is currently in progress, thus, of great interest to the hemophilia community.
The Medical and Scientific Advisory Council (MASAC) of the National Hemophilia Foundation (NHF) has adopted a resolution on fetal tissue research. The resolution was adopted on April 27, 1990 and reads as follows:
The Medical and Scientific Advisory Council (MASAC) of the National Hemophilia Foundation unanimously supports fetal tissue research as a legitimate and important area of scientific investigation and as a vital avenue of research toward curing hemophilia and HIV disease. In recognition of social value/religious issues raised by fetal tissue research, MASAC supports that appropriate standards be applied to safeguard individual rights and minimize potential for abuse of this important resource.
The resolution was approved by the NHF Board on April 27, 1990. By this resolution, MASAC and the Board have supported fetal tissue research with appropriate standards to safeguard individual rights.
CHAPTERS: This is for your information. You may wish to distribute this bulletin to your membership.
PHYSICIANS: Please distribute this bulletin to physicians in your area who treat patients with hemophilia.
