NBDF’s Medical and Scientific Advisory Council (MASAC)  issues recommendations and advisories on treatment, research and other general health concerns for the inheritable blood and bleeding disorders community.

MASAC communications cover a wide range of medical issues, from prevention and treatment to infectious disease complications and women with bleeding disorders. Each year, MASAC establishes standard treatment guidelines. These are often referred to by international experts, medical schools, pharmacists, emergency room personnel, insurance companies and many others.

MASAC For You (MFY) publications are consumer facing, and aim to distill the important medical information found in the MASAC Guidelines, into concise, accessible language in both English and Spanish languages. MFY publications are designed to be shared with medical providers, schools, caregivers, and family members. These “go to” documents empower the community by having quick access to reliable, expert information.

People with bleeding disorders can share MASAC documents with their healthcare providers for shared decision making regarding their treatment.

MASAC Documents

MASAC Document 111 - Resolution Concerning the Development of Comprehensive Outcome Measures

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MASAC Document 110 - Recommendation Concerning CMV Screening of Blood Products for Use in HIV-Positive Individuals with Hemophilia

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MASAC Document 109 - Resolution Concerning Participation in AIDS Clinical Trials by HIV-Infected Persons with Bleeding Disorders

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MASAC Document 108 - Recommendation Regarding Treatment of AIDS Wasting

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MASAC Document 106 - Recommendation Regarding the Use of Recombinant Clotting Factor Replacement Therapy

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MASAC Document 105 - Recommendation Regarding Prevention of Cryptosporidiosis in and the Use of Therapeutic Pools by HIV-Infected Persons

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MASAC Document 102 - Recommendation Regarding the Need for Collaborative Effort to Collect Data Regarding Interventions to Prevent Joint Damage Secondary to Hemophilia

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MASAC Document 101 - Recommendation Regarding Reimbursement for Treatment of Acquired Hemophilia

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MASAC Document 099 - Resolution on Creutzfeldt-Jakob Disease, New Variant CJD, and Plasma-Derived Coagulation Products

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MASAC Document 093 - Statement on Pregnancy Options for HIV-Discordant Couples

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MASAC Document 091 - Recommendation Regarding Risk of Germline Transmission in Gene Therapy Trials for Hemophilia

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MASAC Document 090 - Revised Recommendation Regarding Treatment of HCV in HIV Coinfected Individuals with Hemophilia and Other Inherited Bleeding Disorders

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MASAC Document 087 - Recommendation on Plasma Transfusion Alternatives

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MASAC Document 081 - Considerations for Developing Psychosocial Interventions for Women with Bleeding Disorders

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MASAC Document 077 - Recommendation Regarding Neonatal Intracranial Hemorrhage and Postpartum Hemorrhage

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MASAC Document 073 - Recommendations Regarding Blood Safety Policies

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MASAC Document 040 - Resolution on Home Care Delivery Systems

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MASAC Document 037 - Recommendation Concerning Parvovirus Transmission by Clotting Factor Concentrates

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MASAC Document 032 - Recommendation Concerning Retesting of HIV-Antibody Negative Persons

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MASAC Document 031 - Statement on Phase IV Post Licensing Studies

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