At the recent Bleeding Disorders Conference, a powerful session shed light on the unique challenges faced by teens transitioning to adulthood while managing their condition. The message was clear: with the right tools and support, these young adults are more than capable of thriving.
"It's not just about managing bleeds anymore," shared Shawn B., a post-grad student from Northeastern University. "It's about building a life."
The session, led by young adults with bleeding disorders, covered crucial topics like financial independence, mental health, and self-advocacy in healthcare. Participants stressed the importance of part-time jobs and budgeting, with one speaker noting, "My campus job taught me as much about managing my condition as it did about managing my money."
Mental health emerged as a key focus. "Prioritizing rest and hobbies aren’t selfish—it's necessary," emphasized one participant who found solace in crocheting during stressful times.
Perhaps most importantly, these young adults are becoming their own best advocates. From scheduling appointments to challenging treatment plans, they're taking charge of their care. As one speaker put it, "Don't be afraid to get a second opinion. Your health is worth it."
The session concluded with a powerful message: bleeding disorders may be part of their lives, but they don't define them. These teens are stepping into adulthood with confidence, armed with knowledge, and supported by a community that understands their journey.
