For Immediate Release
PRESS CONTACT:
Kyla Clark
National Bleeding Disorders Foundation
347-920-0047
kclark@bleeding.org
Amplifying Voices: NBDF Celebrates Bleeding Disorders Awareness Month
Expert Resources Aim to Transform Public Understanding
and Support Community Advocacy
New York, New York — Tuesday, March 1, 2025 — The National Bleeding Disorders Foundation (NBDF) is rolling out an engaging, shareable campaign for Bleeding Disorders Awareness Month this March, featuring a newly created social media toolkit designed to amplify community voices and educate the public about inheritable blood and bleeding disorders.
"Bleeding Disorders Awareness Month gives us a critical platform to educate the public about conditions that remain widely misunderstood," said Dr. Michael Recht, Chief Medical Officer of NBDF. "Innovation is the foundation of everything we do—from helping newly diagnosed families navigate their journey to correcting misconceptions among healthcare providers. When people understand the science behind bleeding disorders and the daily realities our community faces, it leads to earlier diagnoses, better treatment adherence, and more compassionate care. Every conversation started this month has the potential to change, or even save, a life."
Campaign Highlights:
- Complete Social Media Toolkit: Ready-to-share graphics, pre-written posts, hashtags, and video content available for download on the NBDF website.
- Daily NBDF Educational Content: 31 days of shareable facts, patient stories, and infographics about various bleeding disorders easy to share from our Instagram, X (formerly known as Twitter), Facebook and LinkedIn social media channels.
- Expert Interview Series: Exclusive interviews with NBDF staff members and leaders providing in-depth insights about bleeding disorders.
- Interactive Resources Hub: Visitors to NBDF's Bleeding Disorders Awareness Month page will find downloadable educational materials organized by condition type.
The foundation encourages community members, healthcare providers, and the general public to visit bleeding.org to access these resources and learn more about inheritable blood and bleeding disorders including hemophilia, von Willebrand disease, and rare factor deficiencies.
"Bleeding Disorders Awareness Month 2025 marks a pivotal moment in the National Bleeding Disorders Foundation (NBDF) mission—not just to educate, but to transform. This March, we're amplifying the voices that often go unheard and connecting those who may feel isolated in their journey. Through our expanded digital toolkit, information resource center, expert and educational resources, we're equipping every community member and their families to become a powerful advocate,” said Phil Gattone, President and CEO of NBDF. “The challenges faced by those with hemophilia, von Willebrand disease, and rare factor disorders deserve more than just recognition—they demand action. By weaving together, the threads of lived experience with cutting-edge research and compassionate care, we're creating a tapestry of support that extends far beyond a single month. This year, we don't just raise awareness—we ignite understanding that will illuminate paths toward better treatment, greater access, and ultimately, lives unburdened by the limitations these disorders can impose."
Media Resources Available
NBDF has assembled a diverse panel of experts available for media interviews throughout March, including:
- Lived Experience Experts (LEEs) with various bleeding disorders
- Hematologists and specialized healthcare providers
- Research scientists advancing treatments
- Advocacy leaders addressing healthcare access challenges
Media outlets interested in covering interviewing a staff member for Bleeding Disorders Awareness Month please contact Kyla Clark, Director of Public Relations, Marketing and Communications at kclark@bleeding.org to arrange interviews or receive additional information. B-roll footage and high-resolution images are also available upon request.
"Inheritable blood and bleeding disorders affect millions of Americans, yet public understanding remains limited," said Kyla Clark, Director of Public Relations, Marketing and Communications. "We invite journalists to help us change that by sharing these important stories with their audiences."
About The National Bleeding Disorders Foundation
The National Bleeding Disorders Foundation (NBDF) is dedicated to finding cures for inheritable blood and bleeding disorders and addressing and preventing these disorders' complications through research, education, and advocacy, enabling people and families to thrive. Today, NBDF serves people across the United States with all bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and platelet disorders. The foundation also supports a network of 52 chapters across the country.
To stay connected, and informed and to learn more about NBDF, please visit www.bleeding.org, or follow the Foundation on social media @nbdf_foundation.
NBDF has changed its name from the National Hemophilia Foundation to the National Bleeding Disorders Foundation, and its domain name has been changed from hemophilia.org to bleeding.org. For questions, please contact Kyla Clark, Director of Public Relations, Marketing and Communications at kclark@bleeding.org.
