FOR IMMEDIATE RELEASE
CONTACT:
National Bleeding Disorders Foundation
Kyla Clark, Director of PR, Marketing and Communications
347-920-0047
National Bleeding Disorders Foundation
Announces Washington Days 2025
Hundreds of Advocates Head to D.C. To Unite for Healthcare Access on Capitol Hill
New York, NY, (February 26, 2025) – The National Bleeding Disorders Foundation (NBDF) will bring hundreds of advocates affected by inherited blood and bleeding disorders to Capitol Hill from March 5-7, 2025, for its annual Washington Days conference. This powerful advocacy event unites the bleeding disorders community with legislators to address critical healthcare policies and funding priorities.
"Washington Days gives our community members a direct voice in shaping policies that affect their daily lives," said, Nathan Schaefer, Senior Vice President of Public Policy and Access at NBDF. "By bringing over 400 advocates to Capitol Hill, we demonstrate the united strength of the bleeding disorders community and its commitment to improving access to care."
Washington Days 2025 will focus on three key legislative priorities: advancing the Help Ensure Lower Patient (HELP) Copays Act to address abusive health plan practices, protecting essential Medicaid access, and sustaining federal hemophilia programs that fund specialized treatment centers. The event will also highlight specific challenges facing women and girls with bleeding disorders across all policy areas.
The three-day event will be held at the Hyatt Regency Washington on Capitol Hill, featuring:
In-person meetings with congressional representatives and staff
Advocacy training sessions
Policy briefings on current legislation
Networking opportunities with community members
Mobile app support for scheduling and legislative resources
"Washington Days represents the beating heart of our advocacy efforts," said Dawn Rotellini, Chief Operating Officer of NBDF. "When our community members share their personal stories with legislators, they transform complex policy issues into real human experiences. These face-to-face conversations have repeatedly proven to be our most effective tool in advancing patient protection and access to care."
Drawing over 400 advocates from over 45 states across America and its territories, this grassroots initiative transforms personal health challenges into powerful policy discussions on Capitol Hill. As advocates meet face-to-face with their congressional representatives, they bring critical healthcare needs directly to the nation's decision-makers.
For more information, please visit bleeding.org/events. For interviews, press passes, and media requests, please contact Kyla Clark, Director of Public Relations, kclark@bleeding.org or 347-920-0047 and Communications at NBDF.
Resources:
About The National Bleeding Disorders Foundation
The National Bleeding Disorders Foundation (NBDF) is dedicated to finding cures for inheritable blood and bleeding disorders and addressing and preventing these disorders' complications through research, education, and advocacy, enabling people and families to thrive. Today, NBDF serves people across the United States with all bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and platelet disorders. The foundation also supports a network of 52 chapters across the country.
To stay connected, and informed and to learn more about NBDF, please visit www.bleeding.org, or follow the Foundation on social media @nbdf_foundation.
NBDF has changed its name from the National Hemophilia Foundation to the National Bleeding Disorders Foundation, and its domain name has been changed from hemophilia.org to bleeding.org. For questions, please contact Kyla Clark, Director of Public Relations, Marketing and Communications at kclark@bleeding.org.
