2018 marks NHF’s 70th year as the bleeding disorders community’s chief advocate, which is why on March 8, we were proud to lead a delegation of nearly 500 community members from 47 states and the District of Columbia in launching the 2018 Red Tie Campaign in the halls of Congress. The campaign aims to help galvanize Congress to act decisively to protect access to affordable, quality healthcare for people with bleeding disrders and all 150 million Americans with chronic conditions.

On March 8, we met with nearly 300 members of Congress and their staff. During those meetings, we shared our stories and advocated for Congress to show its support for our patient community by:

  • Supporting federal standards for public and private insurance so that hard-won patient protections included in the Affordable Care Act (ACA)  and access to insurance is maintained; and
  • Support federal hemophilia programs at the Centers for Disease Control and Prevention (CDC) and Health Resources and Services Administration (HRSA) that ensure access to care for people with bleeding disorders by supporting the national network of 140 hemophilia treatment centers (HTCs).

But the fight is far from over! The Red Tie Campaign continues during Bleeding Disorders Awareness Month (March) through World Hemophilia Day (April 17) and beyond.

So we urge all members of the bleeding disorders community to participate in person with their NHF chapters during their state advocacy days and online by visiting the campaign hub, www.RedTieCampaign.org, to: sign our letter of support to strengthen ACA healthcare protections; get creative in showing your best red tie style using NHF’s virtual photo booth and sharing your photo via Twitter, Facebook and Instagram using #RedTieCampaign; or make a donation to advance NHF’s research, advocacy and education initiatives.

A special thanks to everyone who joined us on Capitol Hill on March 8 and to you for all you do each and every day to ensure the members of our community live happy, healthy and productive lives.

Michelle Rice
Senior Vice President of External Affairs
 

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