NHF is thrilled to report that this year’s Washington Days event, February 26-28, drew a record-breaking 300 plus attendees from 43 states. They participated in a total of 220 Hill visits, 75 of which were meetings with senators (21) and representatives (54).
This year we asked Congress to:
- Support maintaining funding for the federal hemophilia programs at the Maternal and Child Health Bureau (MCHB) and Centers for Disease Control and Prevention (CDC);
- Co-sponsor H.R. 460, the Patients’ Access to Treatments Act of 2013 (House) or introduce companion legislation (Senate). H.R. 460 will increase access to life-saving drugs on specialty tiers by prohibiting insurers from imposing exorbitant co-insurance requirements on patients.
During the State Advocacy Recognition Dinner after the Hill visits, participants enjoyed hearing from Brendan Hayes of the Texas Bleeding Disorders Coalition and Bob Graham of the New York State Bleeding Disorders Coalition. These chapter leaders, recognized for their enduring commitment to the community, shared some local advocacy successes achieved through collaboration at the state level.
Washington Days concluded with the State Advocacy Workshop on Friday. Participants were introduced to NHF’s new advocacy website. Then discussions were held on how consumers and chapters can play a continued role in advocating for positive change under the Affordable Care Act, and on key considerations for effective state advocacy programs.
Thank you for your continued support and effort. We will keep you informed as H.R. 460 moves forward; you can also track the legislation here. If you receive a response from a legislator and/or staff person, or if you have any questions, please feel free to contact any member of the NHF public policy team.
