Stay informed with the latest updates for the inheritable blood disorders community.

Peer-Reviewed Journal Summaries
Updates on My Life Our Future Genotyping Project
Updates on My Life Our Future Genotyping Project
Medical
Past, Present, and Future of Gene Therapy the Focus of New Medscape Activity
Past, Present, and Future of Gene Therapy the Focus of New Medscape…
Peer-Reviewed Journal Summaries
New Study on Cardiovascular Disease in Hemophilia Patients
New Study on Cardiovascular Disease in Hemophilia Patients
Peer-Reviewed Journal Summaries
New Study on Aging, VWF Levels and Bleeding Risk
New Study on Aging, VWF Levels and Bleeding Risk
Medical
Study Shows VWD Testing Rates Remain Low
Study Shows VWD Testing Rates Remain Low
Medical
Prophylaxis Study Results for Boys with Severe Hemophilia A
Prophylaxis Study Results for Boys with Severe Hemophilia A
Peer-Reviewed Journal Summaries
Studying the Effectiveness of pdFX in Females with Factor X
Studying the Effectiveness of pdFX in Females with Factor X
Medical
uniQure Announces Updated Hemophilia B Gene Therapy Data
Medscape Launches New Hemophilia Gene Therapy Education
Medical
NHLBI Workshop on Factor VIII Inhibitors is Less Than Two Weeks Away!
NHLBI Workshop on Factor VIII Inhibitors is Less Than Two Weeks Away!
Medical
Patient Education Leads to Drop in Prosthetic Joint Infections
Patient Education Leads to Drop in Prosthetic Joint Infections
Peer-Reviewed Journal Summaries
Study Suggests Prophylaxis Could Reduce Hospitalizations for VWD Patients
Study Suggests Prophylaxis Could Reduce Hospitalizations for VWD Patients…
Medical
VONVENDI® Receives Expanded FDA Approval for Surgery in VWD Patients
VONVENDI® Receives Expanded FDA Approval for Surgery in VWD Patients
Medical
NHF Announces Telegenetics Investigation
NHF Announces Telegenetics Investigation
Medical
Two New MASAC Documents Issued
MASAC Safety Information Update on Emicizumab (HEMLIBRA)
Medical
Two New MASAC Documents Issued
MASAC Issues New Treatment Recommendation