Skip to main content
Leaderboard Ad
  • NBDF’s Established Initiatives & Impact >
Home
menu burger
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk

Main navigation

  • Who We Are
  • Bleeding Disorders A-Z
  • Educational Programs
  • Advocacy
  • Research
  • Healthcare Professionals
  • Community Resources
  • Our Story
  • Mission & History
  • What We Do
  • What Do We Value?
  • Health Access
  • NBDF Reports
  • Financial Statements
  • Media Newsroom
  • The National Hemophilia Foundation Has a New Name
  • The Red Thread: 75th Anniversary Celebration
  • Our Team
  • Staff
  • Board of Directors
  • MASAC
  • Meet the NYLI
  • Nursing Working Group
  • Physical Therapy Working Group
  • Social Work Working Group
  • Our Partners
  • Partners In Progress
  • The ACT Initiative
  • Red Tie Society
  • CDC Coop Agreement
  • Pathway to Cures
  • Careers
  • What Do We Value?
  • Career Opportunities
  • Volunteer Opportunities
  • Overview
  • Fast Facts
  • What is a Bleeding Disorder?
  • History
  • Types of Bleeds
  • Inhibitors
  • Women and Bleeding Disorders
  • Types
  • Hemophilia A
  • Hemophilia B
  • Von Willebrand Disease
  • Other Factor Deficiencies
  • Inherited Platelet Disorders
  • Treatment
  • Comprehensive Medical Care
  • MASAC For You
  • Treatment Guidelines (MASAC)
  • Current Treatments
  • Future Therapies
  • Clinical Trials
  • Shared Decision-Making
  • Hemophilia Treatment Centers
  • Healthcare Coverage
  • Choosing an Insurance Plan
  • Private Insurance
  • Public Insurance
  • Health Insurance Toolkit
  • Education
  • Bleeding Disorders Conference
  • Steps for Living
  • Inhibitor Education
  • Online Education
  • Rare Bleeding Disorders
  • Von Willebrand Disease
  • Mental Health
  • Gene and Innovative Therapies
  • Women
  • Educational Programming
  • Clotting Cascade
  • Training
  • Youth Leadership (NYLI)
  • Outreach
  • THRIVE
  • THRIVE - en español
  • Undiagnosed
  • Guías Culturales
  • Federal Priorities
  • Access to Care
  • Federal Programs
  • Medicare
  • Medicaid
  • Blood & Blood Product Safety
  • Make All Copays Count
  • State Priorities
  • Utilization Management
  • Patient Out-of-Pocket Expenses
  • Medicaid
  • How You Can Take Action
  • Voices for Policy Change!
  • Register to Vote
  • Washington Days
  • Advocacy Do’s and Don’ts
  • 6 Steps for Grassroots Advocacy
  • Tell Your Story
  • Managed Care & Payers
  • Collaborating on Coverage
  • Quality of Care Guidelines
  • CME/CE Webcast Series
  • Educational Web Portal
  • Quality Improvement & Cost Management
  • Research Projects
  • Foundation Research
  • Funded by Foundation
  • Presented at Our Conference
  • Research Journal Club
  • Research Roundtable
  • Clinical Trial Essentials
  • coreHem Mental Health Tool
  • Fund Your Research
  • Judith Graham Pool Postdoctoral Research Fellowship
  • NBDF-Sanofi Career Development Award
  • Nursing Excellence Fellowship
  • Physical Therapy Excellence Fellowship
  • Social Work Excellence Fellowship
  • Community Voices in Research
  • What is CVR?
  • How & Why Should I Participate?
  • Impact on Research
  • Frequently Asked Questions
  • Login to CVR
  • National Research Blueprint
  • What is the National Research Blueprint?
  • The NRB Structure and Research Priorities
  • Lived Experience Experts (LEEs) Leading the Way
  • How to Get Involved
  • Our NRB Journey Together
  • NRB Resources
  • Guidelines on Care
  • Comprehensive Care
  • MASAC Documents
  • MASAC Minutes
  • Products Licensed (US)
  • Emergency Management
  • Snapshots of VWD Guidelines
  • Education & Resources
  • NBDF-Takeda Clinical Fellowship Program
  • NBDF’s Collaborative Learning Exchange
  • Online Education for Providers
  • Live & Online Learning (Partners)
  • Rare Coagulation Resource Room
  • Peer-reviewed Journals
  • NBDF Publications
  • Other Associations
  • Allied Healthcare
  • Nursing
  • Physical Therapy
  • Social Work
  • Other Interdisciplinary Healthcare Providers
  • Request Information
  • Contact Us
  • The Neil Frick Resource Center
  • Read Our Publications
  • Subscribe for Email Updates
  • Get HemAware Magazine
  • Newsletter Archive
  • Wednesday Webinar Series
  • Resources Near You
  • Chapters
  • Hemophilia Treatment Centers
  • Clinical Trials
  • Bleeding Disorders Camps
  • Community Voices in Research
  • Financial Assistance
  • Scholarships
  • Patient Assistance Programs
Home
  • Who We Are
    • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

          Stay informed with the latest updates for the inheritable blood disorders community.

          NBDF & Community
          New Hemophilia Program Available from WebMD Education
          New Hemophilia Program Available from WebMD Education
          Aug 3, 2015
          Medical
          Bayer Responds to NHF-HFA Joint Statement
          FDA Publishes Drug Shortage Ruling
          Jul 28, 2015
          Medical
          FDA Hosts Scientific Workshop on Immunogenicity and Factor Therapies
          FDA Hosts Scientific Workshop on Immunogenicity and Factor Therapies
          Jul 23, 2015
          Medical
          New Medscape Activity Looks at Integrating Extended Half Life Products into Clinical Practice
          Study Focuses on Cardiovascular Disease in Hemophilia Patients
          Jul 20, 2015
          Medical
          New MASAC Documents Available
          New MASAC Documents Adopted in June 2015
          Jul 13, 2015
          Medical
          Newest Medscape Activity: Updates from the 2015 Meetings in Hemophilia
          Latest Medscape Activity: Clinical Issues Facing…
          Jun 30, 2015
          Medical
          Pediatric Nursing the Focus of New Medscape Educational Activity
          Pediatric Nursing the Focus of New Medscape Educational Activity
          Jun 30, 2015
          NBDF & Community
          Education for Empowerment Workshops Available
          Education for Empowerment Workshops Available
          Jun 29, 2015
          Advocacy & Legislative
          SCOTUS Upholds ACA Subsidies in King v. Burwell Decision
          SCOTUS Upholds ACA Subsidies in King v. Burwell Decision
          Jun 27, 2015
          Medical
          New Medscape Activity: A Review of the Diagnosis, Assessment and Clinical Management of Hemophilia
          New Medscape Activity: A Review of the Diagnosis,…
          Jun 8, 2015
          Medical
          HCV Clinical Trial Expanded Beyond Genotype 1
          HCV Clinical Trial Expanded Beyond Genotype 1
          Jun 5, 2015
          NBDF & Community
          People and Pledges Make Spring Soiree a Smash Hit
          People and Pledges Make Spring Soiree a Smash Hit
          Jun 3, 2015
          Medical
          Inhibitor Chapter Updated in Nurses’ Guide to Bleeding Disorders
          NHF’s Nurses’ Guide to Bleeding Disorders: Intro to…
          May 20, 2015
          Blood Safety
          FDA Initiating National Blood Surveillance Monitoring System
          FDA Initiating National Blood Surveillance Monitoring System
          May 14, 2015
          NBDF & Community
          Share Your Experiences and Opinions on Disclosure
          Share Your Experiences and Opinions on Disclosure
          May 8, 2015

          Pagination

          • First page
          • Previous page
          • …
          • Page 68
          • Page 69
          • Page 70
          • Page 71
          • Current page 72
          • Page 73
          • Page 74
          • Page 75
          • Page 76
          • …
          • Next page
          • Last page

          Contact us

          1230 Avenue of the Americas 16th Floor, New York, NY 10020, United States
          212.328.3700
          212.328.3777

          About

          • What We Do
          • Our Team
          • Careers
          • Request Information

          Resources

          • Chapters
          • HTC Search
          • Clinical Trials
          • Scholarships
          • Camp Near You
          • CVR

          Legal

          • Privacy Policy
          • Medical Disclaimer
          • Gift Acceptance
          • Conflict of Interest
          • Whistleblower
          • Translation Policy

          Give

          • Donate
          • Fundraise
          • Other Ways to Give
          • Why Give?

          NBDF White

          Candid Seal Platinum Charity Navigator hplogo

          © 2025 National Bleeding Disorders Foundation
          All rights reserved.