Research Presented at Our Conference | National Bleeding Disorders Foundation

Prevalence of Depression in US Patients with Hemophilia A Compared with a General Medical Population: A Retrospective Database Analysis

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Thomas J. Humphries, Jennifer Pocoski, Rajesh Kamalakar

Study Design of a Phase 3, Open-Label Trial of the Safety and Efficacy of Recombinant Factor IX Fc Fusion Protein for the Prevention and Treatment of Bleeding Episodes in Previously Untreated Patients With Severe Hemophilia B

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Available Clinical Studies

RESEARCHERS:

Beatrice Nolan, Steven Pipe, Marilyn J. Manco-Johnson, Pia Petrini, Margaret Ragni, Baisong Mei, Geoffrey Allen

Hemophilia of Georgia's Preventive Dental Program

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Gail Day, Deniece Chevannes

Bleeding Risk for the Active Person with Hemophilia: A Comparison of Factor VIII Treatment Regimens

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Available Clinical Studies

RESEARCHERS:

Yan Xiong, Josh Epstein, Elizabeth Schwartz, Bruce Ewenstein

Depression in children with severe Hemophilia - a pilot study

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Gaby Golan, Gili Kenet

Using Oral History for Patient Education: The Gift of Experience II: Conversations with Parents about Hemophilia

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Peer Support/Outreach/Integration Models

RESEARCHERS:

Laura Gray, Ziva Mann, Allie Boutin

Modelling the transfer of rFVIIa procoagulant signal from tissue factor to platelets

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Samuel Woodle, Timothy Lee, Mikhail Ovanesov

Ongoing Prospective ADVATE Immune Tolerance Induction Registry (PAIR) Continues to Demonstrate Success Rates Consistent with Published Literature

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Amy Shapiro, Kate Khair, Jerome Tietel, Ilana Leony-Lasso, Katharina N. Steinitz, Alessandro Gringeri, Gerald Spotts

Safety and efficacy of a recombinant factor IX (BAX326*) in pediatric previously-treated patients with hemophilia B

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Tomasz Urasinski, Oleksandra Stasyshyn, Tatiana Andreeva, Luminita Rusen, Farida G. Perina, MyungShin Oh, Miranda Chapman, Borislava G. Pavlova, Brigitt E. Abbuehl

Hemophilia impacts relationships and employment of young adults (ages 18-30) in the us hemophilia experiences, results and opportunities (hero) study

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Michelle Witkop, Sarah Hawk, Angela Lambing, Chris Guelcher, Randall Curtis, Neil Frick, Laureen Kelley, Michelle Rice, David Cooper

Identification of Previously Unreported F8 and F9 Gene Mutations in Hemophilia Subjects From the Phase 3 Clinical Trials of rFVIIIFc and rFIXFc

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Ekta Seth Chhabra, Barbara A. Konkle, Neil Josephson, Shelley Fletcher, Jurg Sommer, Glenn Pierce

Changes in Healthcare Resource Utilization and Haemophilia Related Events in Patients Diagnosed with Haemophilia A

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Orthopedic and Physical Therapy

RESEARCHERS:

Dana Stafkey-Mailey, Joan Gill, Jennifer Pocoski, Michael Eaddy, Abhijit Gadkari

Real-world Dosing Patterns of Factor in Hemophilia B Patients

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Brieana Buckley, Terrie Livingston, Sanjay Mehta, Sangeeta Krishnan

Comorbidities among Adults with Hemophilia: Hemophilia Utilization Group Studies (HUGS V)

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Mimi Lou, Joanne Wu, Megan Ullman, Marion Koerper, Jiat Ling Poon, Xiaoli Niu, Barbara A. Konkle, Roshni Kulkarni, Randall Curtis, Michael Nichol

Dosing Flexibility in Prophylaxis Regimens With Bayer’s Sucrose-Formulated Recombinant Factor VIII: Experience From Postmarketing Surveillance Studies

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Thomas J. Humphries, Stephan Rauchensteiner, Claudia Tückmantel, Alexander Pieper, Monika Maas Enriquez, Prasad Mathew

Production and Characterization of BAX 855, PEGylated rFVIII with Extended Half-Life

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Jürgen Siekmann, Martin Purtscher, Oliver Zöchling, Artur Mitterer, Mary Bossard, Gayle Philips, Martin Kaliwoda, Michael Graninger, Peter Matthiessen, Gerald Schrenk, Herbert Gritsch, Hanspeter Rottensteiner, Friedrich Scheiflinger, Peter L Turecek