Research Presented at Our Conference | National Bleeding Disorders Foundation

Safety of BAX 855, a Polyethylene Glycol (PEG) Conjugated Full-Length Recombinant Factor VIII Product

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Reinhard Stidl, Barbara Dietrich, Margit Spatzenegger, Eva-Maria Muchitsch, Mary Bossard, Friedrich Scheiflinger, Peter L. Turecek

Prevalence of Depression in US Patients with Hemophilia A Compared with a General Medical Population: A Retrospective Database Analysis

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Thomas J. Humphries, Jennifer Pocoski, Rajesh Kamalakar

Study Design of a Phase 3, Open-Label Trial of the Safety and Efficacy of Recombinant Factor IX Fc Fusion Protein for the Prevention and Treatment of Bleeding Episodes in Previously Untreated Patients With Severe Hemophilia B

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Available Clinical Studies

RESEARCHERS:

Beatrice Nolan, Steven Pipe, Marilyn J. Manco-Johnson, Pia Petrini, Margaret Ragni, Baisong Mei, Geoffrey Allen

Hemophilia of Georgia's Preventive Dental Program

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Gail Day, Deniece Chevannes

Bleeding Risk for the Active Person with Hemophilia: A Comparison of Factor VIII Treatment Regimens

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Available Clinical Studies

RESEARCHERS:

Yan Xiong, Josh Epstein, Elizabeth Schwartz, Bruce Ewenstein

Depression in children with severe Hemophilia - a pilot study

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Gaby Golan, Gili Kenet

Using Oral History for Patient Education: The Gift of Experience II: Conversations with Parents about Hemophilia

AWARDED/PRESENTED: 2014

GRANT/PROGRAM:

Bleeding Disorders Conference

Peer Support/Outreach/Integration Models

RESEARCHERS:

Laura Gray, Ziva Mann, Allie Boutin

Results of a prospective, non-interventional clinical study in 170 VWD patients with a new generation of VWF/FVIII concentrate in Germany

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Inge Scharrer, Sonja Alesci, Mario von Depka, Jennifer Feddern, Susan Halimeh, Janos Kadar, Wolfgang Miesbach, Bruce Schwartz, Ulrike Nowak-Göttl

Prolonged factor IX expression after AAV-mediated gene transfer in adults with severe hemophilia B

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Ulrike M. Reiss, Amit C. Nathwani, Edward G.D. Tuddenham, Bertil Glader, Mark A. Kay, Michael Recht, Yu-Min Shen, Kathleen G. Halka, Pradip Rustagi, Etiena Basner-Tschakarjan, Katherine A. High, Federico Mingozzi, John T. Gray, Arthur W. Nienhuis, Andrew M. Davidoff

Successful buffalo hump removal using liposuction in two men with severe hemophilia and HIV

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Orthopedic and Physical Therapy

RESEARCHERS:

Vicky Hannemann, David Sieber, Ricky Chan, Mark Reding, Bruce Cunningham

Accommodating cultural needs and crossing language barriers in bleeding disorder patients: Results from a provider-patient survey by home infusion provider

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Kirstin Schmidt, Janell Badami, Jose' Iglesias, Cazandra Campos-MacDonald

Stepping Up and Reaching Out to the Community

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Peer Support/Outreach/Integration Models

RESEARCHERS:

Edward J. Kuebler, Madeline Cantini

Preclinical Research with Recombinant Factor VIIa Fusion Proteins with Enhanced In vitro Activity and Improved Half-Life in Mice

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Joe Salas, Siyan Tan, Tamera Ashworth, Elena Kistanova, Kai Chen, Xiangyang Tan, Marisol Acosta, Brad Johnson, Bob Pape, David Light, Glenn F. Pierce, Volker Schellenberger, Haiyan Jiang, Robert Peters

Speaking Frankly to Young Adults with Hemophilia

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Peer Support/Outreach/Integration Models

RESEARCHERS:

Edward J. Kuebler, Pia Petrini Petrini, Diego Gavidia, Eviatar Weizman, Jose Omolara Oyesiku

Prevalence and Predictors of Food Insecurity in Children with Hemophilia

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Sarah Ziha, Elizabeth Adams, Anna Black, Diane Stadler, Michael Recht

Collaborative partnership helps resolve cultural barriers in patient receiving continuous infusion of factor (ACAT Protocol) in the home setting

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Collaboration/Team Models

RESEARCHERS:

Jay Bryant-Wimp, Tamara Hopkins, Lisa Holm, Stacy Bryant-Wimp

Factor for Felons; Management of Incarcerated Hemophiliacs

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Angela Lambing, Linda Mary Mueller, Ellen Kachalsky, Philip Kuriakose

Prospective Clinical Trial of a Novel Recombinant Factor IX in Previously Treated Patients

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Jerzy Windyga, Toshko Lissitchkov, Oleksandra Stasyshyn, Vasily Mamonov, Luminita Rusen, MyungShin Oh, Miranda Chapman, Borislava G. Pavlova, Wing-Yen Wong, Brigitt E. Abbuehl