NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
The 2020 World Federation of Hemophilia Guidelines for the Management of Hemophilia
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Adding the patient's voice to a hemophilia-specific goal menu to facilitate Goal Attainment Scaling: a qualitative study
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Continuous infusion of B domain-truncated recombinant factor VIII, turoctocog alfa, for an acute moderate bleeding episode in hemophilia A: a first case report
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Case Report of Surgical Management of a Hemophilia B Gene Transfer Clinical Trial Participant Following Etranacogene Dezaparvovec (AMT-061) Gene Therapy
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
The Impact of Novel Hemophilia Treatment Products on Inhibitor Testing for the Community Counts Registry for Bleeding Disorders Surveillance
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
Vector DNA clearance from bodily fluids in patients with severe or moderate-severe hemophilia B following systemic administration of AAV5-hFIX and AAV5-hFIX Padua
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Utilization of Telehealth for Home Infusion Teaching and Support in the COVID Era
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
A contemporary framework for understanding mortality in people with congenital hemophilia A (PwcHA)
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
A multidisciplinary approach to the successful transition of a complex patient with severe hemophilia A with inhibitor to Emicizumab (Hemlibra®): A Case Study
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
The WFH World Bleeding Disorders Registry – 16-month update
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
A Retrospective Study Evaluating Immune Tolerance Induction (ITI) with a Plasma-derived Factor VIII for Patients with Hemophilia A and High Titer Inhibitor
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
Data is the new currency: The World Bleeding Disorders Registry Data Quality Accreditation Program
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
NHF’s State Advocacy and the Bleeding Disorders Community
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Law/Ethics/Health Policy
Von Willebrand Disease: An international Survey to Inform Priorities for New Guidelines
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Use of Return to Sport Testing for Prevention of Bleeding Episodes Following an Acute Injury in the Hemophilia Patient
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
von Willebrand Factor in Pregnancy (VIP) Study: A Multicenter Study of Wilate Use in von Willebrand Disease for Childbirth
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
Depression in hemophilia and von Willebrand using the Beck Depression Inventory
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Optimizing signal strength and suppressive potential of FVIII specific CAR Tregs for tolerance induction in a murine model of hemophilia A
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Gender Differences in Parenting Stress and Social Support Among Hemophilia Families
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
No evidence of germline transmission of vector DNA following intravenous administration of AAV5-hFIX to male mice
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials