This session explores the risks and realities of substance abuse issues in the bleeding disorders community. Participants will learn more strategies
This session will apply a psychosocial lens to PTSD and chronic pain by exploring the connection between the two conditions and uncovering potential pain management and coping strategies.
NBD provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections embracing cultural
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is about the psychosocial impact of covid 19 and social unrest
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is about taking care of yourself while taking care of others
While social workers have functioned as essential members of the multidisciplinary care teams at the core of U.S. hemophilia treatment center (HTC) network since its establishment in 1975, a breakdown of their primary roles, both actual and “ideal,” have not been clearly established.
September 7, 2021
FOR IMMEDIATE RELEASE
Media Contacts
While it has been well established that bleeding disorders
During this session, you will gain a deeper understanding of post-traumatic stress disorder (PTSD) and how it can manifest for a person with a bleeding disorder or a family member. We will discuss how PTSD can affect your personal and professional relationships and ways you can seek both medical and non-medical help.
During COVID-19, many children are now figuring out how to learn online through virtual schooling. Many parents and caregivers are now tasked with balancing work, online school, and child care. This session will discuss strategies, tips, and stories of how to navigate the online school and virtual learning with a child who has a bleeding disorder.
Throughout the different stages of living with a bleeding disorder, we can be or become immobile at one point or another. During this session, you will learn movement and meditation techniques that alleviate stress and anxiety that come along with a bleeding disorder.
As a parent or primary caregiver of a child with a bleeding disorder, it's easy to put all of your focus into managing your child's care. Especially during this time, it is important to nurture your relationship with your partner - and to make your mental and emotional health a priority. This session will impart some personal experiences, as well as strategies and tips on how to balance your roles in your partnership and designate time to nurture your mental health and well-being.
Life with a chronic condition can be challenging at times, adding stress to the lives of people with bleeding disorders and their caregivers. The Hemophilia Experiences, Results and Opportunities (HERO) study, conducted by Novo Nordisk, found that while many people experience anxiety when adapting to life with a bleeding disorder, this can be reduced when quality information, advice and support networks are available. Mental health and physical health are closely related, and this presentation will discuss how stress can affect life, how to know when life is out of bal
*ASWB
Moderators:
Damia Dillard, LCSW
Social Worker, UC Davis Medical Center
Denise Lowery, LCSW
Social Worker, UC Davis Medical Center
Speaker:
*ASWB
Moderators:
Kathaleen Schnur, LSW
Social Worker, Hemophilia Center of Western Pennsylvania
Alfredo A. Narvaez, Jr., MSW, LMSW
Social Worker, Louisiana Comprehensive Hemophilia Center
Tulane University Medical Center
Speaker:
Khalid Namoos
Medical Fellow, UCLA David Geffen School of Medicine
By the end of this session, the participant should be better able to:
*ASWB
Moderators:
Amy Schadewald, MSW, LICSW, ACM
Clinical Social Worker, M Health Fairview Center for Bleeding and Clotting Disorders
Connie Thibodeaux, MSW, LCSW, BAC
Hemophilia Social Work Coordinator
Louisiana Center for Bleeding & Clotting Disorders
Tulane University School of Medicine / Deming Department of Medicine
Speaker:
*ASWB
Moderators:
Amanda Stahl, MSW, LICSW
Clinical Social Worker
Boston Hemophilia Center, Brigham and Women’s Hospital
Lucy Ramirez, MSW, LCSW
Clinical Social Worker, Rush Hemophilia & Thrombophilia Center
Speaker:
Jeannie Aschkenasy, PhD
Psychologist
Rush Hemophilia and Thrombophilia Center
Rush University Medical Center
*ASWB
Moderators:
Kathaleen Schnur, LSW
Social Worker, Hemophilia Center of Western Pennsylvania
Lucy Ramirez, MSW, LCSW
Clinical Social Worker, Rush Hemophilia & Thrombophilia Center
Speaker:
Alana Brunner, LCPC, NCC, CCMHC
Mental Health Therapist
St. Luke’s Psychiatric Wellness
By the end of this session, the participant should be better able to:
