On March 11, 2020 the World Health Organization (WHO) declared the novel coronavirus (COVID-19) outbreak a global pandemic. Our life and lifestyle have been changed dramatically by the pandemic. You may ask yourself, what exactly is a pandemic? The word pandemic comes from the Greek words πᾶν, pan, "all" and δῆμος, demos, "people" therefore “all” “people” and means an epidemic of disease that has spread across multiple continents or worldwide, affecting a substantial number of people.
You can continue reading the full letter here.
What People with Bleeding Disorders Should Know
Many of us are looking for new ways to stay active during the COVID-19 pandemic, but it’s important to find an activity that works for you and your bleeding disorder. Join the co-author of NHF’s Playing it Safe, Angela Forsyth, PT, DPT of Diplomat Specialty Pharmacy on Friday, May 15th at 6:00 PM EST who will cover staying active and staying safe during this time.
MyBDC Transition
With new treatment methods and gene therapy on the horizon, we remain committed to serving the bleeding disorders community and all stakeholder groups. In keeping steadfast in our efforts to serve the entire bleeding disorders community, we are announcing that the community powered registry known as MyBDC will be transitioning to be known as the NHF's Community Voices in Research.
Click here to read a letter from President and CEO Dr. Valentino.
Summer Won’t Stop the Coronavirus
Canadian researchers, in a study of 117 geopolitical areas affected by the coronavirus, found that increased temperature and humidity did not have much effect on the spread of the virus. However, they did find that physical distancing and limiting mass gatherings did have a positive effect on epidemic growth.
Learn how to clean your mask effectively.
Staying Up to Date with Childhood Vaccines
Pediatricians are seeing a worrisome drop in childhood vaccines during the pandemic due to fears of exposing children to the coronavirus. However, some doctors are working to find new ways to deliver these important vaccines.
Doctors are Discovering More Ways COVID-19 Attacks the Body
The coronavirus isn’t just a respiratory illness. It can affect the brain, kidneys, nervous system, cause an inflammatory reaction and create blood clots.
Learn how you can keep up with your vaccinations here.
FDA Approves At-Home Saliva Test
The test, developed at Rutgers Clinical Genomics Laboratory, permits testing a saliva sample collected from the patient using a designated self-collection kit.
Read what doctors have discovered here.
Health and Exercise
The YMCA has released a series of health and fitness videos under a variety of activity types, including yoga, kid’s activities, dance fitness, and more.
Remember, you should always first discuss your physical condition with your health care professional or HTC before trying any new exercise or fitness routine.
Mental Health
Children may have a variety of reactions to the COVID-19 pandemic. This short video from Columbia University Irving Medical Center tackles some of the most common issues children (and parents) are facing during the pandemic.
Watch the video Kids and the New Normal here.
We want to hear from you!
Is there a topic you would like NHF to cover in a townhall webinar? Let us know.
This information will also be posted on the NHF website at www.hemophilia.org
To help support our mission and continue to provide you with the information you need through the COVID-19 pandemic, donate here. Thank you.
