I know many of you are overwhelmed with often-conflicting information on the COVID-19 virus. As a doctor and researcher, the health of the bleeding disorder community is my highest priority. Every Friday, I will be sending you vetted, trusted information about the pandemic and information you can use to keep you and your family safe. This information will also be posted on the NHF website at www.hemophilia.org.
If you have specific questions about the COVID-19 virus, please email them to communications@hemophilia.org and I will try to address them in the next email.
What People With Bleeding Disorders Should Know
We have seen no indication that people with bleeding disorders are at an increased risk for contracting COVID-19, and there is no indication that people with bleeding disorders who have no other underlying conditions are more likely to develop severe symptoms. However, the COVID-19 virus is a respiratory illness that may result in severe coughing, and that can increase risk of head bleeds. It is more important than ever to make sure you are adhering to your prophylaxis regimen to decrease the likelihood of all bleeding. Currently, all of our pharmaceutical partners have assured us their supply of medication is unaffected by the outbreak. Do not ration products at this time. Treat as your healthcare provider has prescribed your medications, contact your HTC or healthcare provider with any questions or concerns and above all, stay healthy.
Learn the signs of a head bleed here.
Risk to Pregnant Women and Infants
A small study in Wuhan, China found that pregnant women who tested positive for COVID-19 did not pass the virus to their newborn children.
Why You Should Be Following Social Distancing Advice
A study has found that people who are infected with the COVID-19 virus but have no symptoms can transmit the infection to others. The study, although based on early data, has found that “the findings indicate the presence of pre-symptomatic transmission in more than 10% of cases.”
How Social Distancing Works to Halt the Rapid Spread of Infection
This animated simulation of transmission and recovery shows how social distancing can help contain the spread of the virus.
View the animated simulation here.
Health and Exercise
It is important for people with bleeding disorders of all ages to stay active to maintain joint and emotional health. Remember, even during this pandemic it is safe to:
- Let your kids play outside (just no playdates)
- Go for a family bike ride or walk (put those helmets on!)
- Have a family game night
- Exercise as a family
Here are some more resources to help you stay active during this time
- Coronavirus lockdown: How to stay fit, exercise at home
- How We're Staying Fit Through A Quarantine
- How to Protect Your Mental Health During a Quarantine
- How To Stay Fit While You’re Stuck in Quarantine
Mental Health
Coping with stress and managing your mental health is extremely important during these uncertain times. Here is some helpful information:
