FOR IMMEDIATE RELEASE
Ilana Ostrin
Senior Director of Public Relations and Communications
iostrin@hemophilia.org
212-328-3769
NHF Announces 2023 Winter/Spring Wednesday Webinar Schedule
The free series will continue in the new year with topics including gene editing experiments, innovative insurance cards, substance use, and more.
NEW YORK – The National Hemophilia Foundation is excited to announce the Wednesday Webinar series schedule for the first quarter of the new year. Webinars are free to attend and feature a variety of expert researchers and industry professionals. Throughout late winter and into early spring, the webinars will explore novel research and other topics relevant to the inheritable blood and bleeding disorders community.
As of press time, the Q1 webinar schedule is as follows*:
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January 11: In the first webinar of the year, Kailee Boedeker, Nick McRae, and NHF's Lena Volland deliver updates on the VWD guidelines in honor of their 2nd anniversary
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January 18: Last year’s NHF Philanthropist of the Year Jim Christiansen and NHF’s Maureen Parsons explain how InSourceRX can help more families afford the prescriptions they need
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January 25: Dr. Sylvia Fong explains interindividual variability in transgene mRNA and protein production following adeno-associated virus gene therapy for hemophilia A
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February 1: Topic and speaker to be announced soon
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February 8: Dr. Vinod Balasa and Dr. Jonathan Roberts discuss a real-world study of rurioctocog alfa pegol and emicizumab in U.S. clinical practice among patients with hemophilia A
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February 15: Samantha Carlson and Maria Santaella from the NHF research team talk about research grant recruitment
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February 22: Dr. Jordan Shavit explores how genome editing in zebrafish could provide insights into hemostatic and thrombotic disease
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March 1: NHF’s Marla Feinstein speaks with Kate Bazinsky about her work as chair of the Bleeding Disorders Substance Use and Mental Health Access Coalition
*(Webinar scheduling is subject to change; please visit hemophilia.org/events and follow NHF on Twitter for the latest updates.)
Webinars are live streamed via ZOOM, Facebook, LinkedIn and YouTube at 2 p.m. EST each Wednesday. An audience Q&A session begins at approximately 2:45 p.m. Questions may be submitted during the webinar or in advance via email at communications@hemophilia.org.
All webinars are free and open to the public. Online registration takes just a few simple clicks via NHF's calendar.
NHF created the weekly webinar series in 2020 to educate and inspire throughout the height of the COVID-19 pandemic. Since then, the webinars have continued to serve the inheritable blood and bleeding disorders community as an informative and popular weekly event. Click here to view past webinar recordings.
Those with questions are encouraged to contact communications@hemophilia.org.
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For 75 years, The National Hemophilia Foundation (NHF) has championed research, education, and advocacy for inheritable blood disorders. NHF is dedicated to finding better treatments, preventative measures, and cures for inheritable blood disorders. Founded by patients in 1948, NHF’s impactful programs and initiatives are made possible through the support of a nationwide network of chapters, as well as individuals, partners, and a cooperative agreement with the Centers for Disease Control and Prevention (CDC). Learn more at hemophilia.org.
