Thanks to you, the thousands who have said yes to progress, we have achieved our goal of enrolling 5,000 people in the My Life, Our Future research repository, making it the largest resource of its kind in the world. Beginning in 2017, qualified researchers will be invited to apply to study the repository data, and further advance knowledge about hemophilia care and treatment. We are one step closer to scientific breakthroughs for our community.
As NHF CEO Val D. Bias noted during Opening Session at NHF’s 68th Annual Meeting in Orlando, FL, the people who have participated in this program are the heroes in our community, helping to unlock the mysteries of hemophilia. Every participant counts and can benefit future generations.
We will continue to keep you updated as the program evolves, beginning with a formal announcement to the public about this exciting milestone early next year. And don’t forget, My Life, Our Future is now also open to confirmed and potential carriers (those not yet diagnosed as a carrier), so encourage your family members to participate in the program today. If you are interested in learning more about the carrier program, contact your hemophilia treatment center (HTC) or visit MyLifeOurFuture.org.
My Life, Our Future is a partnership of the American Thrombosis and Hemostasis Network, Bloodworks Northwest, the National Hemophilia Foundation and Biogen. Visit MyLifeOurFuture.org for more information.
