Stay informed with the latest updates for the inheritable blood disorders community.

Medical
Learn More About Shared Decision Making in Hemophilia
Learn More About Shared Decision Making in Hemophilia
Peer-Reviewed Journal Summaries
New Paper Explores Shared Decision Making in Hemophilia
New Paper Explores Shared Decision Making in Hemophilia
Peer-Reviewed Journal Summaries
New Article Offers Scientific Overview of AAV Vectors and Hemophilia Gene Therapy
Article Offers Scientific Overview of AAV Vectors and Hemophilia Gene…
Advocacy & Legislative
NHF Responds to SCOTUS: New Affordable Care Act Ruling Benefits Chronic Disease Patients
New Affordable Care Act Ruling Benefits Chronic Disease Patients
NBDF & Community
NHF Marks the 40th Anniversary of the HIV Epidemic
Industry
Female scientist conducting research in lab with goggles and gloves
BioMarin Presents Positive Safety and Efficacy Data for their…
Industry
Gene Therapy Trial Data Suggests Efficacy in the Presence of Antibodies
Gene Therapy Trial Data Suggests Efficacy in the Presence of Antibodies
NBDF & Community
Press Release: National Patient & Caregiver Survey Shows that COVID-19 Has Exacerbated Treatment Affordability Challenges & Health Inequities for Vulnerable Americans
COVID-19 Exacerbates Treatment Affordability Challenges & Health…
NBDF & Community
Gene Helix for Gene Therapy Image
New Inhibitor Study Using MLOF Research Repository Data Published
NBDF & Community
Reminder – Apply for 2021 Scholarships Now!
Reminder – Apply for 2021 Scholarships Now!
Industry
Gene Therapy Licensing Agreement Between uniQure and CSL Now in Effect
Gene Therapy Licensing Agreement Between uniQure and CSL Now in Effect
Medical
Study Looks at Neuraxial Anesthesia and Postpartum Complications in Hemophilia
Study Looks at Neuraxial Anesthesia and Postpartum Complications in…
NBDF & Community
This national survey is designed to assess patient demographics, their satisfaction with the HTC’s core treatment team, its services, and care processes.
Take the National HTC Patient Satisfaction Survey
NBDF & Community
Wednesday Webinars
May 2021 Wednesday Webinars
Industry
Gene Therapy Helix
uniQure Announces End of Clinical Hold on Hemophilia B Gene Therapy…