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Home
  • Who We Are
    • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

          Stay informed with the latest updates for the inheritable blood disorders community.

          Medical
          Two Deaths Reported in AAV-Based Gene Therapy Trials for Rare Muscle Disorder
          Two Deaths Reported in AAV-Based Gene Therapy Trials for Rare Muscle…
          Jun 29, 2020
          COVID-19
          Town Hall Webinar - Anger Happens: Coping During COVID-19
          Town Hall Webinar - Anger Happens: Coping During COVID-19
          Jun 29, 2020
          Industry
          CSL Acquires Hemophilia B Gene Therapy Candidate from uniQure
          CSL Acquires Hemophilia B Gene Therapy Candidate from uniQure
          Jun 25, 2020
          Industry
          Sanofi and Sobi Make Additional Factor Donation to Aid Program
          Sanofi and Sobi Make Additional Factor Donation to Aid Program
          Jun 17, 2020
          Medical
          New Partners Module Explores Home Treatment Logs
          New Partners Module Explores Home Treatment Logs
          Jun 16, 2020
          COVID-19
          Town Hall Webinar - Pain Management: Coping During COVID-19
          Town Hall Webinar - Pain Management: Coping During COVID-19
          Jun 15, 2020
          Medical
          Hemophilia History the Focus of New Partners Modules
          Hemophilia History the Focus of New Partners Modules
          Jun 8, 2020
          COVID-19
          COVID-19 Assistance Programs
          COVID-19 Assistance Programs
          Jun 5, 2020
          Industry
          BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit
          BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit
          Jun 3, 2020
          NBDF & Community
          We Stand With You
          We Stand With You
          Jun 3, 2020
          COVID-19
          COVID-19 Webinars and Newsletter Update
          COVID-19 Webinars and Newsletter Update
          Jun 2, 2020
          COVID-19
          Town Hall Webinar - Inhibitors: Coping During COVID-19
          Town Hall Webinar - Inhibitors: Coping During COVID-19
          Jun 1, 2020
          Medical
          Accredited Gene Therapy Educational Opportunities Available Online Now
          Accredited Gene Therapy Educational Opportunities Available Online Now
          May 26, 2020
          Peer-Reviewed Journal Summaries
          Establishing a New Paradigm to Realize Health Equity in Hemophilia
          Establishing a New Paradigm to Realize Health Equity in Hemophilia
          May 20, 2020
          COVID-19
          Town Hall Webinar - Playing It Safe: Coping During COVID-19
          Town Hall Webinar - Playing It Safe: Coping During COVID-19
          May 18, 2020

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