Stay informed with the latest updates for the inheritable blood disorders community.

Peer-Reviewed Journal Summaries
Non-Attendance of Clinic Visits at Emory HTC the Focus of New Study
Non-Attendance of Clinic Visits at Emory HTC the Focus of New Study
Industry
Pfizer Initiates First Stage of Phase 3 Hemophilia B Gene Therapy Trial
Pfizer Initiates First Stage of Phase 3 Hemophilia B Gene Therapy Trial
NBDF & Community
You Can Help Inform Guidelines for VWD Diagnosis and Care
You Can Help Inform Guidelines for VWD Diagnosis and Care
Peer-Reviewed Journal Summaries
Updates on My Life Our Future Genotyping Project
Updates on My Life Our Future Genotyping Project
Medical
Past, Present, and Future of Gene Therapy the Focus of New Medscape Activity
Past, Present, and Future of Gene Therapy the Focus of New Medscape…
NHF to Collaborate on Clinical Practice Guidelines for von Willebrand Disease
NHF to Collaborate on Clinical Practice Guidelines for von Willebrand…
Industry
Catalyst’s Trial Update Includes Reports of Antibody Responses
Catalyst’s Trial Update Includes Reports of Antibody Responses
Peer-Reviewed Journal Summaries
New Study on Cardiovascular Disease in Hemophilia Patients
New Study on Cardiovascular Disease in Hemophilia Patients
Update on Latest ACA Lawsuit
Update on Latest ACA Lawsuit
Medical Advisory
Medical Advisory
Medical Advisory #424: Grifols Announces Recall of One Lot of Profilnine
Test Article - do not publish
Genentech Announces the Launch of New Safety Website
Industry
Genentech Patient Foundation Responds to NHF-HFA Letter
HEMLIBRA® Granted Priority Review by FDA
Industry
Bayer Responds to NHF-HFA Joint Statement
FDA Approves New Vial Size for Idelvion®
Industry
uniQure Announces First Hemophilia B Patient Treated in Phase III Gene Therapy Trial
uniQure Reports Successful Delivery of FIX Gene Therapy Despite Antibodies…
Who are the Stars of the Bleeding Disorders Community?
Who are the Stars of the Bleeding Disorders Community?