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Home
  • Who We Are
    • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

          Stay informed with the latest updates for the inheritable blood disorders community.

          Advocacy & Legislative
          Updated Patient Assistance Resource—Programs to Help Cover Your Insurance Costs
          Updated Patient Assistance Resource—Programs to Help Cover Your…
          Jan 20, 2017
          NBDF & Community
          Design the 2017 Hemophilia Walk T-shirt!
          Design the 2017 Hemophilia Walk T-shirt!
          Jan 13, 2017
          Advocacy & Legislative
          Update on Congressional Actions Regarding the Affordable Care Act
          Update on Congressional Actions Regarding the Affordable Care Act
          Jan 12, 2017
          Industry
          GenVec and WU Enter Hemophilia Therapies Agreement
          GenVec and WU Enter Hemophilia Therapies Agreement
          Jan 12, 2017
          Industry
          FDA will Review LFB's Application for Recombinant Factor VIIa Therapy
          FDA will Review LFB's Application for Recombinant Factor VIIa Therapy
          Jan 11, 2017
          Industry
          Sangamo Receives FDA Approval for Hemophilia A Gene Therapy Trial
          Sangamo Receives FDA Approval for Hemophilia A Gene Therapy Trial
          Jan 10, 2017
          Industry
          Sangamo and Pfizer Announce First Patient Treated in Hemophilia A Gene Therapy Trial
          BioMarin’s Hemophilia A Gene Therapy Trial Demonstrates Increased FVIII…
          Jan 9, 2017
          Medical
          Nurses' Guide Updates Travel Planning Chapter
          Nurses' Guide Updates Travel Planning Chapter
          Jan 6, 2017
          Industry
          Updated: Genentech's Subcutaneous Therapy Performing Well in Study
          Updated: Genentech's Subcutaneous Therapy Performing Well in Study
          Jan 3, 2017
          NBDF & Community
          Calling All Men Age 50+ Living with Hemophilia
          Calling All Men Age 50+ Living with Hemophilia
          Dec 27, 2016
          Industry
          Octapharma Reports Data on Inhibitor Rates in Nuwiq® Trial
          Octapharma Reports Data on Inhibitor Rates in Nuwiq® Trial
          Dec 22, 2016
          Medical
          New Medscape Activity on Adolescents and Sports
          New Medscape Activity on Adolescents and Sports
          Dec 21, 2016
          Industry
          UniQure’s Hemophilia B Gene Therapy  Performs Well in Clinical Trial
          UniQure’s Hemophilia B Gene Therapy Performs Well in Clinical Trial
          Dec 19, 2016
          Advocacy & Legislative
          CMS Cancels Controversial Medicare Part B Demo
          CMS Cancels Controversial Medicare Part B Demo
          Dec 16, 2016
          Industry
          CSL Behring Presents Data on Therapeutic Potential of Idelvion®
          CSL Behring Presents Data on Therapeutic Potential of Idelvion®
          Dec 15, 2016

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