The resources in this edition includes articles, videos, and additional background information relevant to the ever-evolving technologies that are driving exciting advances in bleeding disorders treatment and care.

ITP is a rare autoimmune disorder that causes a significant reduction in platelets, which are necessary for clotting.

VGA039 is a subcutaneously-delivered monoclonal antibody therapy designed to target Protein S as a means of restoring proper blood clotting in people with all types of von Willebrand disease.

Female hemophilia carriers often go undiagnosed. Learn about the importance of identifying and supporting these individuals to ensure equitable access to care.

The WFH seeks feedback on its Hemophilia Management Guidelines. Help shape the future of these critical resources by taking a short survey. Your input matters!

NBDF has awarded prestigious fellowships to six exceptional researchers and healthcare professionals to drive innovation in bleeding disorders treatment and care.

This edition of HANDI Highlights includes resources that speak to challenges universal to all caregivers as well as those unique to caring for individuals with bleeding disorders.

The authors of this new paper conducted a retrospective medical chart review focused on GI bleeding in von Willebrand disease patients, which poses significant challenges for clinicians.

The Government Relations Update for October 2024 covers various initiatives and advocacy efforts by the National Bleeding Disorders Foundation at both the federal and state levels. Grassroots advocacy efforts have been launched through "Voices for Policy Change" to highlight key issues such as the importance of Hemophilia Treatment Centers. Federal efforts include pushing for the issuance of a proposed rule to protect patients from copay maximizers and advocating for enhanced advance premium tax credits under the Affordable Care Act. Additionally, comments have been submitted regarding the U.S. Pharmacopeia classification of drugs for bleeding disorders. State-level advocacy efforts are also highlighted, with various initiatives in New Jersey, New York, North Dakota, and Pennsylvania. Various state chapter advocacy days are scheduled for 2025 to address bleeding disorders issues at the local level. The update emphasizes the importance of civic engagement, including voting in the upcoming November elections to make your voice heard.