NBDF has awarded prestigious fellowships to six exceptional researchers and healthcare professionals to drive innovation in bleeding disorders treatment and care.

This edition of HANDI Highlights includes resources that speak to challenges universal to all caregivers as well as those unique to caring for individuals with bleeding disorders.

The authors of this new paper conducted a retrospective medical chart review focused on GI bleeding in von Willebrand disease patients, which poses significant challenges for clinicians.

The Government Relations Update for October 2024 covers various initiatives and advocacy efforts by the National Bleeding Disorders Foundation at both the federal and state levels. Grassroots advocacy efforts have been launched through "Voices for Policy Change" to highlight key issues such as the importance of Hemophilia Treatment Centers. Federal efforts include pushing for the issuance of a proposed rule to protect patients from copay maximizers and advocating for enhanced advance premium tax credits under the Affordable Care Act. Additionally, comments have been submitted regarding the U.S. Pharmacopeia classification of drugs for bleeding disorders. State-level advocacy efforts are also highlighted, with various initiatives in New Jersey, New York, North Dakota, and Pennsylvania. Various state chapter advocacy days are scheduled for 2025 to address bleeding disorders issues at the local level. The update emphasizes the importance of civic engagement, including voting in the upcoming November elections to make your voice heard.

The National Bleeding Disorders Foundation (NBDF) is pleased to announce that three new documents have been issued by the Medical and Scientific Advisory Council (MASAC).

The winner of the 2024 Kevin Child Scholarship is a young man with severe hemophilia A.

This HANDI Highlights is dedicated to inherited bleeding disorders, and women, girls, and people with the propensity to menstruate.

On Oct 11, 2024, Pfizer's HYMPAVZI™ was FDA-approved for preventing bleeding episodes in hemophilia A and B, marking a major advancement in hemophilia care.

In the aftermath of Hurricanes Milton and Helene, we're offering guidance and online resources to help those with bleeding disorders access vital medical care and support.