The National Bleeding Disorders Foundation (NBDF) has launched the "Voices for Policy Change" video series to educate and empower individuals on legislative issues related to bleeding disorders advocacy. The series features videos from community members, advocates, and healthcare providers discussing important advocacy initiatives such as copay accumulators and tips for legislative meetings. Additionally, NBDF is supporting legislation such as the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act and the Creating Hope Reauthorization Act. The organization is also actively engaged in discussions surrounding the regulation of pharmacy benefit managers and the impact on patient access to prescription drugs. State-level advocacy efforts include collaborating with other patient advocacy groups on prescription drug affordability policies in states such as Colorado, Oregon, and Nevada. Additionally, NBDF is participating in meetings and events to address healthcare policies at both the federal and state levels.
