NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Swimming exercise ameliorates pain, swelling and bone quality in a blood-induced joint damage animal model
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Efficacy of a Recombinant Factor IX Investigational Product, IB1001 (trenonacog alfa) in Previously Treated Patients with Hemophilia B
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Pediatric Venous Thrombosis Associated With Staphylococcal Infections: A Single Institutional Experience
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Description and Management of Pain and Functional Impairment in US Adults With Hemophilia: Initial Observations From the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Long-term safety and efficacy of recombinant factor IX Fc (rFIXFc) in adults and adolescents with severe hemophilia B: interim results of the B-YOND study
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Low Annualized Bleeding Rates in Phase 3 Studies of Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Subjects with Target Joints at Baseline
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
BAY 81-8973: The Effects of Routine Prophylaxis on Total, Joint, and Spontaneous Bleeding in Adolescents, Adults, and Children With Severe Hemophilia A
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Development of a novel patient-centered outcome measure in hemophilia using Goal Attainment Scaling
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
BAY 81-8973: Safety Observations in Clinical Trials in Adults, Adolescents, and Children With Severe Hemophilia A
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Patient Preferences for FVIII and BAX 855: Results from the BAX 855 Pivotal Trial
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Patients Treated with Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) Reported Increased or Maintained Physical Activity in the A-LONG and Kids A-LONG Studies
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Hemophilia B Patients Who Switch From rFIX to Extended Half-Life rFIX-Fc: A Retrospective Analysis of Cost using US Specialty Pharmacy Dispensing Data
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Associations Between Annual Bleeding Episodes and Financial Burden of Illness Among Persons with Hemophilia A and B in the United States
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Increased physical activity levels and improvement in treatment outcomes in patients who switch from on-demand to prophylaxis with BAX 855
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Pegylated full-length recombinant factor VIII (BAX 855) for prophylaxis in previously treated adolescent and adult patients with severe hemophilia A
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
HEMO-milestones tool increases assessment of self-management competency and plan for skill building in patients with hemophilia
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Global Knowledge and Confidence Assessment of Hemophilia Clinical Practice Approaches Among Pediatricians
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Adopting and Piloting the Patient Safety and Clinical Pharmacy Services Collaborative (PSPC) breakthrough model to transform and significantly improve adherence, improve health status and bring patients under control in the Hemophilia Community
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Recombinant von Willebrand factor in severe von Willebrand disease: a prospective clinical trial
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Access to Dental Care for People with Bleeding Disorders: Survey Results of Hemophilia Treatment Centers in the United States
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models