NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Personalization of Treatment Regimens for Physically Active Patients: A Comparison of Factor VIII and Extended Half-life Treatment Regimens
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Pharmacist/Provider Collaboration needed to Optimize Dosing Regimens in Order to Reduce Bleed Rates in Hemophilia A Patients on Prophylaxis Regimens
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Cost of Treating Thrombotic Events in a US Population of Von Willebrand Disease Patients
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Interim results of the B-YOND study evaluating long-term safety and efficacy of recombinant factor IX Fc (rFIXFc) in children with severe hemophilia B
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
The impact of missing one or two infusions per month: a comparison of rFVIII and rFVIIIFc regimens
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
SPINART 3-Year Analyses: Patient- and Joint-Level Changes in Colorado Adult Joint Assessment Scale and Magnetic Resonance Imaging Scores With Bayer’s Sucrose-Formulated Recombinant Factor VIII (rFVIII-FS) in Adolescents and Adults
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Leading an Active Lifestyle with Hemophilia B: Estimating the Bleeding Risk with Different FIX Treatment Regimens
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
A Half-Life Extended Fusion Peptide Inhibitor of TFPI Improves Hemostasis in Preclinical Models of Hemophilia
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Pharmacokinetics, safety, and efficacy of pdFX, a new high-purity factor X concentrate: a phase 3 study in patients with moderate or severe hereditary factor X deficiency
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Patient Satisfaction with US Hemophilia Treatment Centers 2015: National Results
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
My Life, Our Future: A “Genetics Day” to Facilitate Efficient Enrollment
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Long-term safety and efficacy of recombinant factor VIII Fc (rFVIIIFc) for the treatment of severe hemophilia A: United States subgroup interim analysis of the ASPIRE study
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
SPACE (Study of Prophylaxis ACtivity, and Effectiveness): An interim descriptive analysis of patient activity levels and participation
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Modelling the transfer of rFVIIa procoagulant signal from tissue factor to platelets
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Ongoing Prospective ADVATE Immune Tolerance Induction Registry (PAIR) Continues to Demonstrate Success Rates Consistent with Published Literature
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Safety and efficacy of a recombinant factor IX (BAX326*) in pediatric previously-treated patients with hemophilia B
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Hemophilia impacts relationships and employment of young adults (ages 18-30) in the us hemophilia experiences, results and opportunities (hero) study
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Identification of Previously Unreported F8 and F9 Gene Mutations in Hemophilia Subjects From the Phase 3 Clinical Trials of rFVIIIFc and rFIXFc
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Changes in Healthcare Resource Utilization and Haemophilia Related Events in Patients Diagnosed with Haemophilia A
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Real-world Dosing Patterns of Factor in Hemophilia B Patients
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research