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Home
  • Who We Are
    • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

          Stay informed with the latest updates for the inheritable blood disorders community.

          NBDF & Community
          Applications open for Travel Grants to NHF's Annual Meeting in Chicago / Abiertas las aplicaciones para becas de viaje a la Reunión Anual de NHF en Chicago
          …
          Dec 15, 2016
          Industry
          Biogen Reports ELOCTATE™ Shows Positive Implications for Quality of Life
          Biogen Reports ELOCTATE™ Shows Positive Implications for Quality of Life
          Dec 14, 2016
          Industry
          Genentech Patient Foundation/Medvantx Announce Ancillary Safety Issue
          Alnylam Reports Progress on Investigational Subcutaneous Hemophilia…
          Dec 13, 2016
          NBDF & Community
          NHF Attends First European Inhibitor Summit
          NHF Attends First European Inhibitor Summit
          Dec 12, 2016
          NBDF & Community
          Message from Val Bias Regarding HIV/AIDS Memorial
          Message from Val Bias Regarding HIV/AIDS Memorial
          Dec 8, 2016
          Advocacy & Legislative
          Planning to Renew or Enroll in the Healthcare Marketplace for 2017?
          Planning to Renew or Enroll in the Healthcare Marketplace for 2017?
          Dec 7, 2016
          Industry
          uniQure Announces Updated Hemophilia B Gene Therapy Data
          Sangamo Reports Hemophilia A Gene Therapy Progress at ASH
          Dec 7, 2016
          Industry
          Pfizer to Build Gene Therapy Facility in North Carolina
          Spark Reports Positive Data from Hemophilia B Gene Therapy Program
          Dec 7, 2016
          Medical
          Medscape Activity Focuses on Joint Health
          Medscape Activity Focuses on Joint Health
          Dec 7, 2016
          Medical
          Medscape Activity Focuses on Optimizing Hemophilia Treatment Guidelines
          Medscape Activity Focuses on Optimizing Hemophilia Treatment Guidelines
          Dec 7, 2016
          NBDF & Community
          We Did It! My Life, Our Future Enrolls 5,000 Participants in Research Repository
          We Did It! My Life, Our Future Enrolls 5,000 Participants in Research…
          Nov 30, 2016
          NBDF & Community
          World AIDS Day Observance to Honor Hemophilia Community
          World AIDS Day Observance to Honor Hemophilia Community
          Nov 28, 2016
          Industry
          Octapharma Announces Two New Clinical Trials
          Octapharma Announces Two New Clinical Trials
          Nov 28, 2016
          Medical
          Researchers Report Oral FIX Delivery Breakthrough
          Researchers Report Oral FIX Delivery Breakthrough
          Nov 28, 2016
          Advocacy & Legislative
          NHF-McMaster University Hemophilia Guideline Accepted to National Guideline Clearinghouse
          NHF-McMaster University Hemophilia Guideline Accepted to…
          Nov 22, 2016

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