NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Canadian social worker and nurse perspectives on the Hemophilia Experiences, Results and Opportunities (HERO) study results from Canada
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Specialty Pharmacy Educational Program, BE EMPOWERED, decreased joint bleeds in adults and increases RICE utilization among caregivers
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Translation and Validation of an Instrument to Measure the Care-related Quality of Life of Informal Caregivers in English for the United States
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
H. Pylori as a cause of iron deficiency in children with bleeding disorders
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Determining the impact of instrument variation and automated software algorithms on the thrombin generation test under hemophilia treatment conditions
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
B-LONG: Phase 3 Study of Long-Lasting Recombinant Factor IX Fc Fusion Protein (rFIXFc) in Hemophilia B
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Better Adherence to Prescribed Treatment Regimen is Associated with Less Chronic Pain among Adolescent and Young Adults with Moderate or Severe Hemophilia
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Burden of Bleeding Episodes Among Persons With Hemophilia B
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Efficacy and safety of a novel rFIX (BAX326): phase III study in previously treated patients with severe or moderately severe hemophilia B undergoing surgical or other invasive procedures
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Cardiovascular management in hemophilia: acute coronary syndromes – an assessment by the ADVANCE Working group on applicability of the ESC Guidelines
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Overview of a global clinical trial program with turoctocog alfa, a new recombinant factor VIII: the guardian™ program
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Outcomes of Total Knee and Hip Arthroplasty for Hemophilic Arthropathy
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Characterization of the Binding of a Novel Recombinant Single-Chain FVIII to von Willebrand Factor
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
FEIBA PROOF: A Prospective, open-label, randomized, parallel study with FEIBA NF to evaluate the efficacy and safety of prophylactic versus on-demand treatment in haemophilia A or B subjects with inhibitors
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Association of Overweight and Obesity with the Use of Self and Home-Based Infusion Therapy
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Relative importance of treatment characteristics to patients and parents of children with hemophilia
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Assuring the Virus Safety of Source Plasma for Further Manufacturing by Establishing Epidemiological Limits in Donor Centers
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
The National Hemophilia Program Coordinating Center - Assessing Support Needs of HTC Staff
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Global Development Plan for a Double Virus Inactivated Fibrinogen Concentrate for the Treatment of Congenital Fibrinogen Deficiency
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Biodistribution of rVIIa-FP, a Recombinant Fusion Protein Linking Coagulation Factor VIIa With Albumin, in Rats
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research