NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Turoctocog alfa, a new B-domain truncated, recombinant factor VIII (rFVIII) developed by Novo Nordisk for the prevention and treatment of bleeding episodes in hemophilia A patients
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Relationship of quality of life, pain, and self-reported arthritis with age, employment, bleed rate, and utilization of hemophilia treatment center and healthcare provider services: US results from adult patients with hemophilia in the HERO study
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Enhanced properties of blood clotting factor IX variants with elevated membrane affinity
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Motivational Interviewing and Health Behavior Change: An Educational Intervention for Healthcare Professionals
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
The PROLONG-ATE Study: A Phase 2/3 Study to Evaluate Efficacy and Safety of BAX 855,A Longer-Acting PEGylated Full-Length Recombinant Factor VIII (PEG-rFVIII),for Prophylaxis and Treatment of Bleeding in Severe Haemophilia A
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
The cytokine storm which follows joint bleeding: relationship of plasma cytokine concentrations and joint tissue gene expression in acute stage of hemarthrosis
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Preclinical Characteristics of a Recombinant Fusion Protein Linking Activated Coagulation Factor VII With Albumin (rVIIa-FP)
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Low inhibitor incidence in previously untreated patients with severe haemophilia A treated with octanate® - Update from the PUP-GCP clinical trial
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Dosing intervals and bleeding rates before and following treatment with recombinant Factor IX Fc fusion protein in patients with severe hemophilia B: Experience from the B-LONG study
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Patients’ and Caregivers’ Perspectives on Stability of Factor VIII Products for Hemophilia A: A Web-Based Study in the United States and Canada
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Great Plains Regional Girls with Bleeding and Clotting Disorders Camp
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Clinical Study in Children with Severe Haemophilia A Investigating Efficacy, Immunogenicity, Pharmacokinetics, and Safety of Human-cl rhFVIII
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Examining The Impact Of Parent Demographics, Child Characteristics And Child Hemophilia Related History On Parental Stress And Parent Support
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Canadian social worker and nurse perspectives on the Hemophilia Experiences, Results and Opportunities (HERO) study results from Canada
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Specialty Pharmacy Educational Program, BE EMPOWERED, decreased joint bleeds in adults and increases RICE utilization among caregivers
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Translation and Validation of an Instrument to Measure the Care-related Quality of Life of Informal Caregivers in English for the United States
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
H. Pylori as a cause of iron deficiency in children with bleeding disorders
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Determining the impact of instrument variation and automated software algorithms on the thrombin generation test under hemophilia treatment conditions
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
B-LONG: Phase 3 Study of Long-Lasting Recombinant Factor IX Fc Fusion Protein (rFIXFc) in Hemophilia B
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Better Adherence to Prescribed Treatment Regimen is Associated with Less Chronic Pain among Adolescent and Young Adults with Moderate or Severe Hemophilia
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research