NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Patients Treated with Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) Reported Increased or Maintained Physical Activity in the A-LONG and Kids A-LONG Studies
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Hemophilia B Patients Who Switch From rFIX to Extended Half-Life rFIX-Fc: A Retrospective Analysis of Cost using US Specialty Pharmacy Dispensing Data
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Associations Between Annual Bleeding Episodes and Financial Burden of Illness Among Persons with Hemophilia A and B in the United States
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Increased physical activity levels and improvement in treatment outcomes in patients who switch from on-demand to prophylaxis with BAX 855
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Pegylated full-length recombinant factor VIII (BAX 855) for prophylaxis in previously treated adolescent and adult patients with severe hemophilia A
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
HEMO-milestones tool increases assessment of self-management competency and plan for skill building in patients with hemophilia
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Global Knowledge and Confidence Assessment of Hemophilia Clinical Practice Approaches Among Pediatricians
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Adopting and Piloting the Patient Safety and Clinical Pharmacy Services Collaborative (PSPC) breakthrough model to transform and significantly improve adherence, improve health status and bring patients under control in the Hemophilia Community
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Recombinant von Willebrand factor in severe von Willebrand disease: a prospective clinical trial
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Access to Dental Care for People with Bleeding Disorders: Survey Results of Hemophilia Treatment Centers in the United States
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Changes in Child and Parent Ratings of Health-Related Quality of Life Among Children With Hemophilia A in the KIDS A-LONG study
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Varying Regimens in Hemophilia A Patients Undergoing Immune Tolerance: Removing Barriers to Enhance Outcomes
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Efficacy of a Recombinant Factor IX Investigational Product, IB1001 (trenonacog alfa) for Perioperative Management in Hemophilia B Patients
AWARDED/PRESENTED: 2015
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
3-Year Results From SPINART: Prolonged Reduction of Bleeding With Prophylaxis Using Bayer’s Sucrose-Formulated Recombinant Factor VIII
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Extended-interval Dosing with rFIXFc Is Associated With Low Bleeding Rates and a Reduction in Weekly Factor Use
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Pediatric Hemophilia and Post Trauma Stress Disorder (PTSD)
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Study Design of a Phase 3, Open-Label Trial of the Safety and Efficacy of Recombinant Factor VIII Fc Fusion Protein for the Prevention and Treatment of Bleeding Episodes in Previously Untreated Patients With Severe Hemophilia A
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Rates of falls, injurious falls, and activity restriction due to fear of falling in adults with hemophilia
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Safety and Effectiveness of Anti Inhibitor Coagulation Complex (AICC) in Routine Clinical Management: a Post-Authorization Safety Study (PASS)
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Kids A-LONG: Safety, Efficacy, and Pharmacokinetics of Long-Acting Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Previously Treated Children with Hemophilia A
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research