NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
An Initiative to Implement Quality Improvement Measures for Hemophilia Treatment Centers
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Treatment, Outcomes, and Access to Care Among Young Adults (ages 18-30) With Hemophilia in the US Hemophilia Experiences, Results and Opportunities (HERO) Study
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Mobilizing Patients Towards Positive Health Management Through Motivational Interviewing
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
A Comparison of US Prophylaxis Rates Shows Lower Prescribing for Severe Hemophilia B Patients than Severe Hemophilia A Patients
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Global Assessment of Knowledge and Practices in the Diagnosis, Classification, and Management of Hemophilia among Pediatric Providers
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Haemophilia A Carriers Experience Reduced Health-Related Quality of Life
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
Joint Outcomes by Magnetic Resonance Imaging After Treatment With Bayer’s Sucrose-Formulated Recombinant Factor VIII in the SPINART Study: Results at the 3-year Evaluation Timepoint
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Turoctocog alfa, a new B-domain truncated, recombinant factor VIII (rFVIII) developed by Novo Nordisk for the prevention and treatment of bleeding episodes in hemophilia A patients
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Relationship of quality of life, pain, and self-reported arthritis with age, employment, bleed rate, and utilization of hemophilia treatment center and healthcare provider services: US results from adult patients with hemophilia in the HERO study
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Enhanced properties of blood clotting factor IX variants with elevated membrane affinity
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Motivational Interviewing and Health Behavior Change: An Educational Intervention for Healthcare Professionals
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
The PROLONG-ATE Study: A Phase 2/3 Study to Evaluate Efficacy and Safety of BAX 855,A Longer-Acting PEGylated Full-Length Recombinant Factor VIII (PEG-rFVIII),for Prophylaxis and Treatment of Bleeding in Severe Haemophilia A
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
The cytokine storm which follows joint bleeding: relationship of plasma cytokine concentrations and joint tissue gene expression in acute stage of hemarthrosis
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Preclinical Characteristics of a Recombinant Fusion Protein Linking Activated Coagulation Factor VII With Albumin (rVIIa-FP)
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Low inhibitor incidence in previously untreated patients with severe haemophilia A treated with octanate® - Update from the PUP-GCP clinical trial
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Dosing intervals and bleeding rates before and following treatment with recombinant Factor IX Fc fusion protein in patients with severe hemophilia B: Experience from the B-LONG study
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Patients’ and Caregivers’ Perspectives on Stability of Factor VIII Products for Hemophilia A: A Web-Based Study in the United States and Canada
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Great Plains Regional Girls with Bleeding and Clotting Disorders Camp
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Clinical Study in Children with Severe Haemophilia A Investigating Efficacy, Immunogenicity, Pharmacokinetics, and Safety of Human-cl rhFVIII
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Examining The Impact Of Parent Demographics, Child Characteristics And Child Hemophilia Related History On Parental Stress And Parent Support
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues