NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Real World Utilization and Cost of aPCC versus rFVIIa Among Hemophilia Patients with Inhibitors in the US
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
An Initiative to Implement Quality Improvement Measures for Hemophilia Treatment Centers
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Treatment, Outcomes, and Access to Care Among Young Adults (ages 18-30) With Hemophilia in the US Hemophilia Experiences, Results and Opportunities (HERO) Study
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Mobilizing Patients Towards Positive Health Management Through Motivational Interviewing
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
A Comparison of US Prophylaxis Rates Shows Lower Prescribing for Severe Hemophilia B Patients than Severe Hemophilia A Patients
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Global Assessment of Knowledge and Practices in the Diagnosis, Classification, and Management of Hemophilia among Pediatric Providers
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Haemophilia A Carriers Experience Reduced Health-Related Quality of Life
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
Joint Outcomes by Magnetic Resonance Imaging After Treatment With Bayer’s Sucrose-Formulated Recombinant Factor VIII in the SPINART Study: Results at the 3-year Evaluation Timepoint
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
3-Year Results From SPINART: Prolonged Reduction of Bleeding With Prophylaxis Using Bayer’s Sucrose-Formulated Recombinant Factor VIII
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Extended-interval Dosing with rFIXFc Is Associated With Low Bleeding Rates and a Reduction in Weekly Factor Use
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Pediatric Hemophilia and Post Trauma Stress Disorder (PTSD)
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Study Design of a Phase 3, Open-Label Trial of the Safety and Efficacy of Recombinant Factor VIII Fc Fusion Protein for the Prevention and Treatment of Bleeding Episodes in Previously Untreated Patients With Severe Hemophilia A
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
Rates of falls, injurious falls, and activity restriction due to fear of falling in adults with hemophilia
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Safety and Effectiveness of Anti Inhibitor Coagulation Complex (AICC) in Routine Clinical Management: a Post-Authorization Safety Study (PASS)
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Kids A-LONG: Safety, Efficacy, and Pharmacokinetics of Long-Acting Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Previously Treated Children with Hemophilia A
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
The expression of codon-optimized blood coagulation factor VIII using a lentiviral system
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Hemophilia Inhibitor PUP Study (HIPS)
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Available Clinical Studies
The use of combination therapy with plasma derived and recombinant factor VIII in patients with hemophilia A: a single institution experience
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Point-of-care musculoskeletal ultrasound is critical for the diagnosis of hemarthroses and soft tissue inflammation in adult patients with painful hemophilic arthropathy
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Pain and Arthropathy Impact Quality of Life of Young Adults With Hemophilia (ages 18-30) in the United States: Observations From the Hemophilia Experiences, Results and Opportunities (HERO) Study
AWARDED/PRESENTED: 2014
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues