Research Presented at Our Conference

The influence of co-morbidities on annualized bleeding rates in patients with severe hemophilia A: experiences from the pivotal turoctocog alfa prophylaxis trial (guardianTM1)

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Tatyana Andreeva, Takashi Suzuki, Rasmus H Nielsen, Erik Andersen, Anders Lindblom

Patient, Caregiver, and Nurse Satisfaction with BAXJECT III, a Next-Generation Reconstitution System for AHF-rFVIII (ADVATE®)

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Michelle Witkop, Jennifer Maahs, Diane Ito, Josh Epstein

The cytokine storm which follows joint bleeding: identifying a plasma signature of joint bleeding

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Narine Hakobyan, Candace Enockson, Lin Cong, Leonard A. Valentino

Preclinical PK/PD Characteristics of rVIII-SingleChain, a Novel Recombinant Single-Chain FVIII

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Sabine Zollner, Elmar Raquet, Annette Feussner, Jochen Müller-Cohrs, Hubert Metzner, Thomas Weimer, Ingo Pragst, Gerhard Dickneite, Stefan Schulte

Characteristics and Treatment Patterns of Medicaid Patients with Hemophilia A Receiving Prophylaxis vs. On-Demand Factor VIII Therapy

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Orthopedic and Physical Therapy

RESEARCHERS:

Jennifer Pocoski, Joseph LeCates, Abhijit Gadkari, Mei Sheng Duh, Francis Vekeman

Adherence and outcomes in hemophilia

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Jeffrey Vietri, Robert Furlan, Sangeeta Krishnan

Pathogen Safety of Plasma-Derived Clotting Factor Concentrates Demonstrated by Validation of Inactivation and Removal Steps in the Manufacturing Process

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Robert Klamroth, Albrecht Gröner, Toby L. Simon, Henry Mead

Effect of Albumin Fusion on the Biodistribution of Recombinant Factor IX-FP

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Eva Herzog, Stephen Harris, Andrew McEwen, Ingo Pragst, Gerhard Dickneite, Stefan Schulte, Sabine Zollner

Use of a double virally inactivated FVIII/VWF in 30 children and young people with von Willebrands disease - a single centre experience

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Kate Khair, Jemma Efford, Mary Mathias, Bruce Schwartz, Ri Liesner

Psychosocial Intervention To Improve Compliance with Comprehensive Care Visits

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Psychosocial Issues

RESEARCHERS:

Melinda Galizia, Alice Cohen, Phyllis Kandl, Ellen White

Clinical Study to Investigate the Immunogenicity, Efficacy and Safety of Treatment with Human-cl rhFVIII in Previously Untreated Patients with Severe Haemophilia A

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Sigurd Knaub, Ri Liesner, Martina Jansen

Long-Term Follow-Up of Arteriovenous Fistulae in Bleeding Disorders

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Colleen Tapia, Maria Tovar-Herrera, John Urgo, Walter McCarthy, Lisa Boggio, Mindy Simpson, Leonard Valentino

Efficacy of a strength training program for improving elbow joint range of motion and function in adults with hemophilia

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Hilary Smith, David Oleson, Nancy Durben, Michael Recht

Understanding the psychosocial undercurrents in spontaneous bleeds in severe hemophilia A to facilitate collaboration and customized/personalized regimens: a case study

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Collaboration/Team Models

RESEARCHERS:

Avinash Patwardhan, Joan Couden, Kirstin Schmidt, Jose' Iglesias

Predicting PK/PD advantages of modified activated coagulation factor VII molecules

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Biomedical/Coagulation Research

RESEARCHERS:

Alexey M Shibeko, Samuel A Woodle, Timothy K Lee, Mikhail V Ovanesov

A-LONG: Phase 3 Study of Long-Lasting Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Hemophilia A

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Clinical Research

RESEARCHERS:

Johnny Mahlangu, Jerry Powell, Margaret Ragni, Neil Josephson, Roshni Kulkarni, Patrick Fogarty, Amy Shapiro, Ivan Nesterov, Haiyan Jiang, Jurg Sommer, Jennifer Dumont, Alvin Luk, Aoife Brennan, Glenn Pierce

The use of Low Molecular Weight Heparins in Pregnancy: A single center experience 2002-2012

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Women's Research

RESEARCHERS:

Lisa Boggio, Magdalena Ballarin, Leonard Valentino

Oral Care for People with Von Willebrand Disease: An Unmet Need

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Law/Ethics/Health Policy

RESEARCHERS:

Rebecca Schaffer, Elif Aksoylu, Henry Martinez

Prospective Study of Plasma-Derived Factor VIII/VWF in Immune Tolerance Induction Therapy: The Spirit Registry

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Available Clinical Studies

RESEARCHERS:

Rebecca Kruse-Jarres, Alicia Gilsenan, Jeffrey Spears, James Kaye

Reduced Joint Range of Motion in Females with FVIII Deficiency

AWARDED/PRESENTED: 2013

GRANT/PROGRAM:

Bleeding Disorders Conference

Women's Research

RESEARCHERS:

Robert Sidonio, Fatima Mili, Tengguo Li, Connie Miller, Craig Hooper, Michael DeBaun, Michael Soucie