NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Results of a prospective, non-interventional clinical study in 170 VWD patients with a new generation of VWF/FVIII concentrate in Germany
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Prolonged factor IX expression after AAV-mediated gene transfer in adults with severe hemophilia B
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Successful buffalo hump removal using liposuction in two men with severe hemophilia and HIV
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Accommodating cultural needs and crossing language barriers in bleeding disorder patients: Results from a provider-patient survey by home infusion provider
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Stepping Up and Reaching Out to the Community
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Preclinical Research with Recombinant Factor VIIa Fusion Proteins with Enhanced In vitro Activity and Improved Half-Life in Mice
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Speaking Frankly to Young Adults with Hemophilia
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Prevalence and Predictors of Food Insecurity in Children with Hemophilia
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Collaborative partnership helps resolve cultural barriers in patient receiving continuous infusion of factor (ACAT Protocol) in the home setting
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Factor for Felons; Management of Incarcerated Hemophiliacs
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Prospective Clinical Trial of a Novel Recombinant Factor IX in Previously Treated Patients
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
Atrial Fibrillation in People with Hemophilia: a Cross-Sectional Evaluation in Europe by the ADVANCE Working Group
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
The influence of co-morbidities on annualized bleeding rates in patients with severe hemophilia A: experiences from the pivotal turoctocog alfa prophylaxis trial (guardianTM1)
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
A Phase I Study of Safety and Pharmacokinetics of BAX 855, a Longer Acting PEGylated Full-Length Recombinant Factor VIII (PEG-rFVIII), in Patients with Severe Hemophilia A
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research
The cytokine storm which follows joint bleeding: identifying a plasma signature of joint bleeding
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Preclinical PK/PD Characteristics of rVIII-SingleChain, a Novel Recombinant Single-Chain FVIII
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Patient, Caregiver, and Nurse Satisfaction with BAXJECT III, a Next-Generation Reconstitution System for AHF-rFVIII (ADVATE®)
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Characteristics and Treatment Patterns of Medicaid Patients with Hemophilia A Receiving Prophylaxis vs. On-Demand Factor VIII Therapy
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Adherence and outcomes in hemophilia
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Pathogen Safety of Plasma-Derived Clotting Factor Concentrates Demonstrated by Validation of Inactivation and Removal Steps in the Manufacturing Process
AWARDED/PRESENTED: 2013
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research