Meet NHF's Education Specialist, Sonia Roger! As one of NHF's most tenured employees, Sonia is a vital part of the NHF community and loves giving back to families and patients. Learn more about her role at NHF!
Stephanie Lapidow, Executive Director of the Hemophilia Association of New Jersey (HANJ), is leading the charge to protect patients from predatory insurance practices through critical state legislation (S-3818/A-5217).
🎙 Tune In! NBDF's Bill Robie Talks HB 1216 & Rx Costs
Today, we're sharing a powerful letter from Emily Ouellette, Executive Director of the Bleeding Disorders Alliance of North Dakota (BDAND), featured on February 18, 2025, in the Minot Daily News.
The National Bleeding Disorders Foundation (NBDF) is proud to announce its achievement of the prestigious Platinum Seal of Transparency from Candid (formerly known as Guidestar), placing NBDF among the top 0.1% of U.S.
In a significant advancement for von Willebrand Disease (VWD) research and treatment, an international team of experts, including patients, clinicians, and researchers, has developed the first-ever core outcome set (COS) for VWD clinical trials.
The National Bleeding Disorders Foundation (NBDF) is deeply saddened to announce the passing of Dr.
The National Bleeding Disorders Foundation is proud to support an important research initiative led by Emily Agen, a genetic counseling graduate student at the University of Michigan, who is
On April 2, 2024, 8 News Now covered our Las Vegas Chapter's Winter Wine Walk with Stephanie Dupree.
Data provided by the National Bleeding Disorders Foundation (NBDF) was referenced recently in the coverage of a tragic case in Chelsea that took a dark turn for 3-year-old Yael Guardado Prudencio, a child with hemophilia and a seizure disorder.
The HANDI Resources Center Team is pleased to announce new 2024 scholarship opportunities available for the bleeding disorders community!
For Immediate Release
CONTACT:
Carrie Strehlau and Kyla Clark
National Bleeding Disorders Foundation
212-382-3773
kclark@bleeding.org
NBDF is pleased to announce HANDI Highlights, which is designed to connect the bleeding disorders community with timely, practical, and readily-accessible resources.
Recruitment is now open for Own Your Path- a program for young adult males with hemophilia who are currently in the transition years between 18-29. We know that maintaining adherence to a prophy regimen can have short and long -term health benefits.
Meet NHF's Vice President of Research Strategy, Michelle Witkop! Michelle took her passion for pain management and impactful work and joined NHF. She continues to be a vital part of the NHF community and assisting families and patients.
Patti joined NHF’s team after becoming a member of NYLI in 2018. Learn more about her experience!
Joseph expanded his role at his local NHF chapter with the skills he learned through NYL
Dejah uses her NYLI experience to lead others as she pursues her master’s degree in biol
Get the latest news from the 2022 Bleeding Disorders Conference with the Wrap-up issue of the NHF Show Daily!
Get the latest news from the 2022 Bleeding Disorders Conference with the Saturday issue of the NHF Show Daily!
Get the latest news from the 2022 Bleeding Disorders Conference with Friday issue of the NHF Show Daily!
The 2022 Bleeding Disorders Conference has kicked off with first issue of the NHF Show Daily!
Meet NHF's Chapter Development Specialist, Nick Kallinicou! Nick took his passion for meaningful and impactful work and joined NHF. He continues to be a vital part of the NHF community and assisting families and patients.
FOR IMMEDIATE RELEASE
MEDIA CONTACT:
Ilana Ostrin
212 328 3769
June 3 is the birth date of the late physician and researcher, Dr. Charles Drew. Dr.
NHF wants to know what is working well, and what isn't! How can we better serve you as an organization and community leader?
The next generation of researchers are continuously inspiring and fueling NHF’s renewed focus on research. Dr.
NHF sat down with NYLI member Garrett H. to hear more about why he joined NYLI and what others should consider when filling out their application.
Dr. Bethany Samuelson Bannow sat down with NHF to discuss her co-authored Twitter account, Dr. Period Hackers.
Dr. Johnny Mahlangu graciously sat down with NHF's CEO Dr. Len Valentino for an informative dialogue to honor Black History Month and World Hemophilia Day. Read these Q&As and watch the video to learn more!
Takeda recently announced that the U.S. Food and Drug Administration (FDA) has approved VONVENDI® for routine prophylaxis to reduce the frequency of bleeding episodes in adults with severe Type 3 von Willebrand disease (VWD) receiving on-demand therapy.
Val and I first got to know one another 30 years ago, when we were opposing one another in an election for president of the National Hemophilia Foundation (US).
Interested in working in the hematology field, but don’t think that medical school is right for you? Consider an allied health field, like genetic counseling or physical therapy.
The World Federation of Hemophilia (WFH) Twinning Program creates short-term collaborative partnerships between Hemophilia centers, patient organizations and youth groups in developed and developing countries.
The National Hemophilia Foundation is thrilled to announce the full implementation of its top legislative priority from 2020, The Hemophilia SNF Access Act. This critical law will rectify a long-standing problem to improve access to skilled nursing facilities (SNFs) for Medicare beneficiari
Media Contact:
Brett Spitale, VP of Advancement
bspitale@hemophilia.org
646-784-0368
FOR PUBLIC COMMENT - JUNE 3, 2021
The National Hemophilia Foundation (NHF) today, in conjunction with the American Kidney Fund (AKF), Art
Hemophilia Treatment Centers (HTCs) across the United States are participating in the 2021 National HTC Patient Satisfaction Survey. If you, or someone you care for, had contact with the HTC in 2020, they want to hear from you!
NHF's Wednesday Webinars for May 2021 will focus on Women's Health Month, featuring topics of interest to both patients and healthcare providers who are interested in issues faced by women with inheritable blood disorders.
NHF's Wednesday Webinars for April 2021 will feature an array of speakers and topics of interest to both healthcare providers and patients and families with blood disorders alike.
April Webinars
All webinars are from 2:00pm-3:00pm ET.
NHF's Wednesday Webinars for March 2021 will feature an array of speakers and topics of interest to both healthcare providers and patients and families with blood disorders alike.
March Webinars
All webinars are from 2:00pm-3:00pm ET.
